PMID- 10067761 OWN - NLM STAT- MEDLINE DCOM- 19990430 LR - 20180607 IS - 1055-6656 (Print) IS - 1055-6656 (Linking) VI - 36 IP - 1 DP - 1999 Jan TI - Psychosocial adjustment in twin pairs with and without hemifacial microsomia. PG - 43-50 AB - OBJECTIVE: To compare the psychosocial adjustment of children with and without hemifacial microsomia (HFM). DESIGN: This cross-sectional pilot study investigated psychosocial adjustment of twin pairs in which one twin was affected with HFM and the other was unimpaired. Data were analyzed using paired t tests. SETTING: The dental medicine clinic of a large urban children's hospital, serving a multistate area. PARTICIPANTS: Participants were six twin pairs aged 9 to 15 years and their parents. Data were also collected from classroom teachers. MAIN OUTCOME MEASURES: Outcome measures included: the Child Behavior Checklist (CBCL), the Teacher Report Form (TRF), the Coopersmith Self-Esteem Inventory (SEI), and a structured self-concept interview (the Self-Interview). RESULTS: Children with HFM had significantly higher CBCL and TRF total behavior problem scores and lower SEI general self-esteem scores than their unimpaired twins. No differences were found in CBCL competence scores. Interview data revealed concerns among the HFM group related to appearance, negative social responses, and fear of hospital procedures. Children also reported positive aspects of coping with HFM. CONCLUSIONS: The results of this study suggest that, similar to other craniofacial conditions, HFM is associated with an elevated risk for childhood psychosocial difficulties. Replication of specific findings with a larger sample is needed. Multicenter, collaborative studies are a crucial next step for this field. FAU - Maris, C L AU - Maris CL AD - Child and Infant Development Project, Children's Hospital and Regional Medical Center, Seattle, Washington. FAU - Endriga, M C AU - Endriga MC FAU - Omnell, M L AU - Omnell ML FAU - Speltz, M L AU - Speltz ML LA - eng PT - Comparative Study PT - Journal Article PL - United States TA - Cleft Palate Craniofac J JT - The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association JID - 9102566 SB - IM MH - Adaptation, Psychological MH - Adolescent MH - Attitude to Health MH - Child MH - Child Behavior MH - Cross-Sectional Studies MH - Diseases in Twins/*psychology MH - Esthetics MH - Facial Asymmetry/*genetics/psychology MH - Female MH - Hospitalization MH - Hospitals, Pediatric MH - Hospitals, Urban MH - Humans MH - Interpersonal Relations MH - Male MH - Multicenter Studies as Topic MH - Parents MH - Pilot Projects MH - Risk Factors MH - Self Concept MH - Self-Assessment MH - *Social Adjustment MH - Teaching MH - Twins/*psychology EDAT- 1999/03/06 00:00 MHDA- 1999/03/06 00:01 CRDT- 1999/03/06 00:00 PHST- 1999/03/06 00:00 [pubmed] PHST- 1999/03/06 00:01 [medline] PHST- 1999/03/06 00:00 [entrez] AID - 10.1597/1545-1569_1999_036_0043_paitpw_2.3.co_2 [doi] PST - ppublish SO - Cleft Palate Craniofac J. 1999 Jan;36(1):43-50. doi: 10.1597/1545-1569_1999_036_0043_paitpw_2.3.co_2.