PMID- 15715692
OWN - NLM
STAT- MEDLINE
DCOM- 20050613
LR  - 20061115
IS  - 0305-1862 (Print)
IS  - 0305-1862 (Linking)
VI  - 31
IP  - 2
DP  - 2005 Mar
TI  - Mothers' perceptions of children's quality of life following early diagnosis and 
      treatment for retinoblastoma (Rb).
PG  - 137-42
AB  - We describe the Quality of Life (QoL) and IQ of survivors of retinoblastoma (Rb), 
      both in relation to the normal population and between subgroups of Rb patients 
      differing in relative risk (i.e. unilateral vs. bilateral disease). The sample 
      included 54 children (28 males, age-range 8-16 years) and their mothers. Mothers 
      completed standardized questionnaires to report their own QoL and that of their 
      child. Children completed a brief IQ test. Compared with population norms, 
      mothers reported lower levels of QoL for their child on total QoL and for 
      sub-scales measuring Physical and Psychosocial function. Mothers reported their 
      own QoL to be comparable or higher than norms on all but one of eight sub-scales 
      (energy/vitality). Compared with population norms, children with no visual 
      impairment scored in the normal range for tasks measuring Verbal IQ, but below 
      the mean on tasks measuring Performance IQ. According to their mothers, survivors 
      of Rb have excellent school attendance and take part in most school activities. 
      However, based on standardized questionnaire, they show compromised QoL. We 
      consider that excellent survival rates in Rb are matched with good QoL according 
      to mothers' report.
FAU - Sheppard, Linda
AU  - Sheppard L
AD  - CR-UK Child and Family Health Group, Department of Psychology, University of 
      Sheffield, Western Bank, Sheffield, UK. l.sheppard@sheffield.ac.uk
FAU - Eiser, Christine
AU  - Eiser C
FAU - Kingston, Judith
AU  - Kingston J
LA  - eng
PT  - Journal Article
PT  - Research Support, Non-U.S. Gov't
PL  - England
TA  - Child Care Health Dev
JT  - Child: care, health and development
JID - 7602632
SB  - IM
MH  - Adolescent
MH  - Blindness/etiology/psychology/rehabilitation
MH  - Child
MH  - Education
MH  - Exercise
MH  - Facies
MH  - Female
MH  - Humans
MH  - Intelligence
MH  - Interpersonal Relations
MH  - Male
MH  - Mothers/*psychology
MH  - Quality of Life/*psychology
MH  - Recreation
MH  - Retinal Neoplasms/complications/*psychology/rehabilitation
MH  - Retinoblastoma/complications/*psychology/rehabilitation
MH  - Social Perception
MH  - Social Support
EDAT- 2005/02/18 09:00
MHDA- 2005/06/14 09:00
CRDT- 2005/02/18 09:00
PHST- 2005/02/18 09:00 [pubmed]
PHST- 2005/06/14 09:00 [medline]
PHST- 2005/02/18 09:00 [entrez]
AID - CCH498 [pii]
AID - 10.1111/j.1365-2214.2005.00498.x [doi]
PST - ppublish
SO  - Child Care Health Dev. 2005 Mar;31(2):137-42. doi: 
      10.1111/j.1365-2214.2005.00498.x.