PMID- 16103557
OWN - NLM
STAT- MEDLINE
DCOM- 20050907
LR  - 20220318
IS  - 1468-201X (Electronic)
IS  - 1355-6037 (Print)
IS  - 1355-6037 (Linking)
VI  - 91
IP  - 9
DP  - 2005 Sep
TI  - Is the severity of congenital heart disease associated with the quality of life 
      and perceived health of adult patients?
PG  - 1193-8
AB  - OBJECTIVE: To explore whether the severity of congenital heart disease is 
      associated with the quality of life and perceived health status of adult 
      patients. DESIGN: Descriptive, cross sectional study. SETTING: Adult congenital 
      heart disease programme in one tertiary care centre in Belgium. PATIENTS: 629 
      patients (378 men, 251 women) with a median age of 24 years. MAIN OUTCOME 
      MEASURES: Disease severity was operationalized in terms of initial diagnosis 
      (classification of Task Force 1 of the 32nd Bethesda Conference), illness course 
      (disease severity index), and current functional status (New York Heart 
      Association (NYHA) class, ability index, congenital heart disease functional 
      index, and left ventricular ejection fraction). Quality of life was measured by a 
      linear analogue scale, the satisfaction with life scale, and the schedule for 
      evaluation of individual quality of life. Perceived health status was also 
      assessed with a linear analogue scale. RESULTS: Scores derived from the disease 
      severity classification systems were weakly negatively associated with quality of 
      life and health status, ranging from -0.05 to -0.27. The NYHA functional class 
      and ability index were consistently associated with quality of life and perceived 
      health. CONCLUSIONS: This study showed that the severity of congenital heart 
      disease is marginally associated with patients' quality of life and perceived 
      health. Functional status was more related to patients' assessment of their 
      quality of life than was the initial diagnosis or illness course.
FAU - Moons, P
AU  - Moons P
AD  - Centre for Health Services and Nursing Research, Katholieke Universiteit, Leuven, 
      Belgium. philip.moons@med.kuleuven.ac.be
FAU - Van Deyk, K
AU  - Van Deyk K
FAU - De Geest, S
AU  - De Geest S
FAU - Gewillig, M
AU  - Gewillig M
FAU - Budts, W
AU  - Budts W
LA  - eng
PT  - Journal Article
PT  - Research Support, Non-U.S. Gov't
PL  - England
TA  - Heart
JT  - Heart (British Cardiac Society)
JID - 9602087
SB  - IM
MH  - Adolescent
MH  - Adult
MH  - Aged
MH  - Cross-Sectional Studies
MH  - Female
MH  - Health Status Indicators
MH  - Heart Defects, Congenital/physiopathology/*rehabilitation
MH  - Humans
MH  - Male
MH  - Middle Aged
MH  - *Quality of Life
MH  - Severity of Illness Index
PMC - PMC1769070
EDAT- 2005/08/17 09:00
MHDA- 2005/09/08 09:00
PMCR- 2008/09/01
CRDT- 2005/08/17 09:00
PHST- 2005/08/17 09:00 [pubmed]
PHST- 2005/09/08 09:00 [medline]
PHST- 2005/08/17 09:00 [entrez]
PHST- 2008/09/01 00:00 [pmc-release]
AID - 91/9/1193 [pii]
AID - 0911193 [pii]
AID - 10.1136/hrt.2004.042234 [doi]
PST - ppublish
SO  - Heart. 2005 Sep;91(9):1193-8. doi: 10.1136/hrt.2004.042234.