PMID- 17183614
OWN - NLM
STAT- MEDLINE
DCOM- 20070410
LR  - 20191210
IS  - 0315-162X (Print)
IS  - 0315-162X (Linking)
VI  - 34
IP  - 3
DP  - 2007 Mar
TI  - The Quality of My Life questionnaire: the minimal clinically important difference 
      for pediatric rheumatology patients.
PG  - 581-7
AB  - OBJECTIVE: To determine parent-child agreement for the Quality of My Life (QoML) 
      questionnaire. To establish construct validity of the QoML questionnaire. To 
      determine the minimal clinically important difference (MCID) for the Quality of 
      Life (QOL) and Health-Related Quality of Life (HRQOL) scales. METHODS: A total of 
      136 families of children with inflammatory arthritis were interviewed. The QoML 
      questionnaire was completed for the child's current state of health, and under 2 
      hypothetical scenarios, where (1) there is a hypothetical small improvement, and 
      (2) there is a hypothetical small deterioration in health. The differences 
      between the original QOL and HRQOL scores and hypothetical improvement and 
      deterioration scores, respectively, were calculated to give MCID scores. RESULTS: 
      In total, 131 families completed the questionnaires. Intraclass correlation 
      coefficients for parent proxy report and patient self-report of the QOL and HRQOL 
      were 0.63 and 0.40, respectively. Correlations of QOL with pain and disease 
      severity were moderately negative (r = -0.55 and -0.56, respectively, p < 
      0.0001). Correlations of HRQOL with pain and disease severity were strongly 
      negative (r = -0.66 and r = -0.68, respectively, p < 0.0001). The MCID for 
      improvement on the QOL was 7 mm, and for the HRQOL 11 mm. The MCID for 
      deterioration in QOL was -33 mm, and for HRQOL -38 mm. CONCLUSION: The QoML 
      questionnaire demonstrated fair parent-child agreement and good convergent 
      construct validity. MCID scores will enable clinicians to interpret QoML 
      questionnaire results in a clinically meaningful way.
FAU - Gong, Grace W K
AU  - Gong GW
AD  - Division of Rheumatology, Population Health Sciences Program, Research Institute, 
      The Hospital for Sick Children, Toronto, Ontario, Canada.
FAU - Young, Nancy L
AU  - Young NL
FAU - Dempster, Helen
AU  - Dempster H
FAU - Porepa, Michelle
AU  - Porepa M
FAU - Feldman, Brian M
AU  - Feldman BM
LA  - eng
PT  - Journal Article
PT  - Validation Study
DEP - 20061215
PL  - Canada
TA  - J Rheumatol
JT  - The Journal of rheumatology
JID - 7501984
SB  - IM
CIN - J Rheumatol. 2007 Mar;34(3):463-5. PMID: 17343299
MH  - Arthritis/*complications/therapy
MH  - Child
MH  - Clinical Trials as Topic
MH  - Female
MH  - Health Status
MH  - Humans
MH  - Male
MH  - Pain/etiology
MH  - Parent-Child Relations
MH  - *Quality of Life
MH  - *Reproducibility of Results
MH  - *Severity of Illness Index
MH  - *Surveys and Questionnaires
MH  - Treatment Outcome
EDAT- 2006/12/22 09:00
MHDA- 2007/04/11 09:00
CRDT- 2006/12/22 09:00
PHST- 2006/12/22 09:00 [pubmed]
PHST- 2007/04/11 09:00 [medline]
PHST- 2006/12/22 09:00 [entrez]
AID - 06/13/1221 [pii]
PST - ppublish
SO  - J Rheumatol. 2007 Mar;34(3):581-7. Epub 2006 Dec 15.