PMID- 21309651
OWN - NLM
STAT- MEDLINE
DCOM- 20140722
LR  - 20151119
IS  - 1545-1569 (Electronic)
IS  - 1055-6656 (Linking)
VI  - 48
IP  - 6
DP  - 2011 Nov
TI  - Living with a craniofacial condition: development of the Craniofacial Experiences 
      Questionnaire (CFEQ) for adolescents and their parents.
PG  - 727-35
LID - 10.1597/09-050 [doi]
AB  - OBJECTIVE: To develop a new instrument (the Craniofacial Experiences 
      Questionnaire, CFEQ) to measure both stressors and positive aspects of living 
      with a craniofacial condition from adolescent and parent perspectives, and to 
      examine its validity and reliability. A secondary aim was to explore experiences 
      reported according to age, gender, and diagnosis. DESIGN: Self-report and parent 
      report questionnaires (CFEQ, Youth Self Report [YSR], Child Behavior Checklist 
      [CBCL], Behavioral and Emotional Rating Scale [BERS]) were completed by 
      adolescents with congenital craniofacial conditions and their parents. 
      PARTICIPANTS: Fifty adolescents with craniofacial conditions and 55 of their 
      parents. RESULTS: Internal reliability of the stressor and positive aspects 
      scales was acceptable (.81 to .92) but was lower for some stressor subscales 
      (.50-.86). Higher stressor scale scores were related to poorer adjustment (CBCL r 
      = .55, YSR r = .37). There were no consistent differences in the stressful or 
      positive experiences of young people with craniofacial conditions according to 
      gender or age. There were no differences in stressors reported according to 
      diagnosis. CONCLUSIONS: The CFEQ shows promise as a clinical and research tool 
      for investigating the stressors and positive experiences of young people with 
      craniofacial conditions. Consistent with the literature on chronic pediatric 
      conditions, there were few differences in experiences of young people according 
      to diagnosis. Furthermore, the lack of gender or age differences supports the 
      need for clinicians to comprehensively assess the experiences of young people 
      regardless of demographic variables.
FAU - Roberts, Rachel M
AU  - Roberts RM
FAU - Shute, Rosalyn
AU  - Shute R
LA  - eng
PT  - Journal Article
DEP - 20110210
PL  - United States
TA  - Cleft Palate Craniofac J
JT  - The Cleft palate-craniofacial journal : official publication of the American 
      Cleft Palate-Craniofacial Association
JID - 9102566
SB  - IM
MH  - Adolescent
MH  - Australia
MH  - Checklist
MH  - Child
MH  - Craniofacial Abnormalities/*psychology
MH  - Female
MH  - Humans
MH  - Longitudinal Studies
MH  - Male
MH  - Oral Health
MH  - Parents/*psychology
MH  - Quality of Life
MH  - Social Adjustment
MH  - Stress, Psychological/psychology
MH  - *Surveys and Questionnaires
MH  - Young Adult
EDAT- 2011/02/12 06:00
MHDA- 2014/07/23 06:00
CRDT- 2011/02/12 06:00
PHST- 2011/02/12 06:00 [entrez]
PHST- 2011/02/12 06:00 [pubmed]
PHST- 2014/07/23 06:00 [medline]
AID - 10.1597/09-050 [doi]
PST - ppublish
SO  - Cleft Palate Craniofac J. 2011 Nov;48(6):727-35. doi: 10.1597/09-050. Epub 2011 
      Feb 10.