PMID- 21702724
OWN - NLM
STAT- MEDLINE
DCOM- 20120229
LR  - 20220317
IS  - 1364-6915 (Electronic)
IS  - 1360-7863 (Linking)
VI  - 15
IP  - 8
DP  - 2011 Nov
TI  - Sustained informal care: the feasibility, construct validity and test-retest 
      reliability of the CarerQol-instrument to measure the impact of informal care in 
      long-term care.
PG  - 1018-27
LID - 10.1080/13607863.2011.575351 [doi]
AB  - OBJECTIVES: This study analyses feasibility, construct validity and test-retest 
      reliability of the Care-related Quality of Life (CarerQol)-instrument among 
      informal caregivers of long-term care (LTC) users. The CarerQol measures the 
      impact of informal care by assessing happiness (CarerQol-VAS) and describing 
      burden dimensions (CarerQol-7D). METHODS: Data was gathered among informal 
      caregivers of patients obtaining day care or living in a LTC facility in the 
      Netherlands with two questionnaires sent with a two-week interval (n test = 108, 
      n retest = 100). Percentages of missing values indicated feasibility of the 
      CarerQol. Construct validity assessed the extent to which differences in 
      background characteristics were reflected in happiness scores (CarerQol-VAS) with 
      univariate and multivariate statistics. Additionally, construct validity was 
      tested with assessing the correlation between the CarerQol and the Self-Rated 
      Burden (SRB) scale. Percentages of complete agreement between CarerQol scores at 
      test and retest, Cohen's kappa coefficients (kappa value) and Intraclass Correlation 
      Coefficients (ICCs) were used to assess reliability. RESULTS: In this study, 3.7% 
      was missing on the CarerQol. CarerQol-VAS was positively associated with 
      caregivers' age and health, and negatively with SRB score. The percentage of 
      complete agreement of CarerQol-VAS between the measure moments was 60% and 
      between 76% and 96% for CarerQol-7D. kappa value and ICC of CarerQol-VAS were 0.52 
      and 0.86, and ranged between 0.55 and 0.94 for CarerQol-7D. CONCLUSION: The 
      CarerQol measures the impact of informal care among carers of LTC users in a 
      feasible, valid and reliable way.
FAU - Hoefman, Renske J
AU  - Hoefman RJ
AD  - Erasmus University Rotterdam, Department of Health Policy and Management, The 
      Netherlands. hoefman@bmg.eur.nl
FAU - van Exel, N Job A
AU  - van Exel NJ
FAU - Foets, Marleen
AU  - Foets M
FAU - Brouwer, Werner B F
AU  - Brouwer WB
LA  - eng
PT  - Journal Article
PT  - Research Support, Non-U.S. Gov't
PT  - Validation Study
DEP - 20110627
PL  - England
TA  - Aging Ment Health
JT  - Aging & mental health
JID - 9705773
SB  - IM
MH  - Aged
MH  - Aged, 80 and over
MH  - Caregivers/*psychology
MH  - Feasibility Studies
MH  - Female
MH  - Humans
MH  - Long-Term Care
MH  - Male
MH  - Middle Aged
MH  - Models, Statistical
MH  - Netherlands
MH  - *Nursing Homes
MH  - *Quality of Life
MH  - Surveys and Questionnaires/*standards
EDAT- 2011/06/28 06:00
MHDA- 2012/03/01 06:00
CRDT- 2011/06/28 06:00
PHST- 2011/06/28 06:00 [entrez]
PHST- 2011/06/28 06:00 [pubmed]
PHST- 2012/03/01 06:00 [medline]
AID - 10.1080/13607863.2011.575351 [doi]
PST - ppublish
SO  - Aging Ment Health. 2011 Nov;15(8):1018-27. doi: 10.1080/13607863.2011.575351. 
      Epub 2011 Jun 27.