PMID- 23839260
OWN - NLM
STAT- MEDLINE
DCOM- 20140716
LR  - 20160707
IS  - 1179-1888 (Electronic)
IS  - 1175-0561 (Linking)
VI  - 14
IP  - 6
DP  - 2013 Dec
TI  - Quality of life in family members of vitiligo patients: a questionnaire study in 
      Saudi Arabia.
PG  - 489-95
LID - 10.1007/s40257-013-0037-5 [doi]
AB  - BACKGROUND: Many dermatologic disorders are known to adversely affect quality of 
      life (QoL) in close relatives or partners of patients; however, it is unknown 
      whether vitiligo impacts the QoL of family members. OBJECTIVE: The aim of this 
      study was to identify the level and domains in which the QoL of 
      partners/relatives of patients with vitiligo are affected by the disease. 
      METHODS: A total of 141 patients with vitiligo, along with their family members, 
      were recruited to complete validated QoL questionnaires, including the 
      Dermatology Life Quality Index (DLQI) and the Family Dermatology Life Quality 
      Index (FDLQI). RESULTS: Family member QoL was affected in 129 (91.5 %) of 
      subjects. Mean FDLQI score was 10.3 +/- 6.4 standard deviation. Higher FDLQI score 
      (greater impairment in QoL) was significantly associated with male patients, a 
      shorter duration of disease, and higher educational levels in family members. The 
      most affected FDLQI items in order of decreasing incidence were emotional impact, 
      burden of care, impact on the physical well-being of the family member, problems 
      due to the reaction of others in response to the patient's skin appearance and 
      effect on social life. Overall FDLQI score and the number of items affected 
      correlated with overall patient DLQI score (p < 0.001, r = 0.56 and p < 0.001, 
      r = 0.53, respectively). CONCLUSIONS: Vitiligo has a major impact on the QoL of 
      family members of patients and often significantly impairs many aspects of their 
      lives. Educational and supportive programs are recommended for family members of 
      vitiligo patients who are at an increased risk for QoL impairments.
FAU - Bin Saif, Ghada A
AU  - Bin Saif GA
AD  - Department of Dermatology, College of Medicine, King Saud University, P.O. Box 
      54753, Riyadh, 11524, Kingdom of Saudi Arabia, gbinsaif@ksu.edu.sa.
FAU - Al-Balbeesi, Amal O
AU  - Al-Balbeesi AO
FAU - Binshabaib, Rawan
AU  - Binshabaib R
FAU - Alsaad, Deema
AU  - Alsaad D
FAU - Kwatra, Shawn G
AU  - Kwatra SG
FAU - Alzolibani, Abdullateef A
AU  - Alzolibani AA
FAU - Yosipovitch, Gil
AU  - Yosipovitch G
LA  - eng
PT  - Journal Article
PT  - Research Support, Non-U.S. Gov't
PL  - New Zealand
TA  - Am J Clin Dermatol
JT  - American journal of clinical dermatology
JID - 100895290
SB  - IM
MH  - Adolescent
MH  - Adult
MH  - Aged
MH  - Educational Status
MH  - Family/*psychology
MH  - Female
MH  - Humans
MH  - Male
MH  - Middle Aged
MH  - Prospective Studies
MH  - *Quality of Life
MH  - Saudi Arabia
MH  - Sex Factors
MH  - Surveys and Questionnaires
MH  - Time Factors
MH  - Vitiligo/pathology/*psychology
MH  - Young Adult
EDAT- 2013/07/11 06:00
MHDA- 2014/07/17 06:00
CRDT- 2013/07/11 06:00
PHST- 2013/07/11 06:00 [entrez]
PHST- 2013/07/11 06:00 [pubmed]
PHST- 2014/07/17 06:00 [medline]
AID - 10.1007/s40257-013-0037-5 [doi]
PST - ppublish
SO  - Am J Clin Dermatol. 2013 Dec;14(6):489-95. doi: 10.1007/s40257-013-0037-5.