PMID- 23883430
OWN - NLM
STAT- MEDLINE
DCOM- 20140317
LR  - 20231104
IS  - 1472-6947 (Electronic)
IS  - 1472-6947 (Linking)
VI  - 13
DP  - 2013 Jul 25
TI  - Designing a multifaceted survivorship care plan to meet the information and 
      communication needs of breast cancer patients and their family physicians: 
      results of a qualitative pilot study.
PG  - 76
LID - 10.1186/1472-6947-13-76 [doi]
AB  - BACKGROUND: Following the completion of treatment and as they enter the follow-up 
      phase, breast cancer patients (BCPs) often recount feeling 'lost in transition', 
      and are left with many questions concerning how their ongoing care and monitoring 
      for recurrence will be managed. Family physicians (FPs) also frequently report 
      feeling ill-equipped to provide follow-up care to BCPs. In this three-phase 
      qualitative pilot study we designed, implemented and evaluated a multi-faceted 
      survivorship care plan (SCP) to address the information needs of BCPs at our 
      facility and of their FPs. METHODS: In Phase 1 focus groups and individual 
      interviews were conducted with 35 participants from three stakeholder groups 
      (BCPs, FPs and oncology specialist health care providers (OHCPs)), to identify 
      specific information needs. An SCP was then designed based on these findings, 
      consisting of both web-based and paper-based tools (Phase 2). For Phase 3, both 
      sets of tools were subsequently evaluated via focus groups and interviews with 26 
      participants. Interviews and focus groups were audio taped, transcribed and 
      content analysed for emergent themes and patterns. RESULTS: In Phase 1 patients 
      commented that web-based, paper-based and human resources components were 
      desirable in any SCP. Patients did not focus exclusively on the post-treatment 
      period, but instead spoke of evolving needs throughout their cancer journey. FPs 
      indicated that any tools to support them must distill important information in a 
      user-friendly format. In Phase 2, a pilot SCP was subsequently designed, 
      consisting of both web-based and paper-based materials tailored specifically to 
      the needs of BCPs as well as FPs. During Phase 3 (evaluation) BCPs indicated that 
      the SCP was effective at addressing many of their needs, and offered suggestions 
      for future improvements. Both patients and FPs found the pilot SCP to be an 
      improvement from the previous standard of care. Patients perceived the quality of 
      the BCP-FP relationship as integral to their comfort with FPs assuming follow-up 
      responsibilities. CONCLUSIONS: This pilot multi-component SCP shows promise in 
      addressing the information needs of BCPs and the FPs who care for them. Next 
      steps include refinement of the different SCP components, further evaluation 
      (including usability testing), and planning for more extensive implementation.
FAU - Haq, Rashida
AU  - Haq R
AD  - Division of Hematology & Oncology, St. Michael's Hospital, Toronto, ON, Canada.
FAU - Heus, Lineke
AU  - Heus L
FAU - Baker, Natalie A
AU  - Baker NA
FAU - Dastur, Daisy
AU  - Dastur D
FAU - Leung, Fok-Han
AU  - Leung FH
FAU - Leung, Eman
AU  - Leung E
FAU - Li, Benjamin
AU  - Li B
FAU - Vu, Kathy
AU  - Vu K
FAU - Parsons, Janet A
AU  - Parsons JA
LA  - eng
PT  - Journal Article
PT  - Research Support, Non-U.S. Gov't
DEP - 20130725
PL  - England
TA  - BMC Med Inform Decis Mak
JT  - BMC medical informatics and decision making
JID - 101088682
SB  - IM
MH  - Adult
MH  - Aged
MH  - Aged, 80 and over
MH  - Breast Neoplasms/prevention & control/*psychology
MH  - Canada
MH  - Communication
MH  - *Continuity of Patient Care
MH  - Female
MH  - Focus Groups
MH  - Humans
MH  - Information Services/*supply & distribution
MH  - Middle Aged
MH  - *Needs Assessment
MH  - Patient Care Planning/organization & administration
MH  - Physicians, Family/*psychology
MH  - Pilot Projects
MH  - Qualitative Research
MH  - Survivors/*psychology
PMC - PMC3733735
EDAT- 2013/07/26 06:00
MHDA- 2014/03/19 06:00
PMCR- 2013/07/25
CRDT- 2013/07/26 06:00
PHST- 2013/02/08 00:00 [received]
PHST- 2013/07/19 00:00 [accepted]
PHST- 2013/07/26 06:00 [entrez]
PHST- 2013/07/26 06:00 [pubmed]
PHST- 2014/03/19 06:00 [medline]
PHST- 2013/07/25 00:00 [pmc-release]
AID - 1472-6947-13-76 [pii]
AID - 10.1186/1472-6947-13-76 [doi]
PST - epublish
SO  - BMC Med Inform Decis Mak. 2013 Jul 25;13:76. doi: 10.1186/1472-6947-13-76.