PMID- 24013682 OWN - NLM STAT- MEDLINE DCOM- 20140424 LR - 20220427 IS - 1460-2385 (Electronic) IS - 0931-0509 (Linking) VI - 28 IP - 10 DP - 2013 Oct TI - Conservative care in Europe--nephrologists' experience with the decision not to start renal replacement therapy. PG - 2604-12 LID - 10.1093/ndt/gft287 [doi] AB - BACKGROUND: For some patients with end-stage renal disease (ESRD), providing conservative care until death may be an acceptable alternative for renal replacement therapy (RRT). We aimed to estimate the occurrence of conservative care in Europe and evaluated opinions about which factors nephrologists consider important in their decision not to offer RRT. METHODS: With a web-based survey sent to nephrologists in 11 European countries, we inquired how often RRT was not started in 2009 and how specific factors would influence the nephrologists' decision to provide conservative care. We compared subgroups by nephrologist and facility characteristics using chi-square tests and Mann-Whitney U tests. RESULTS: We received 433 responses. Nephrologists decided to offer conservative care in 10% of their patients [interquartile range (IQR) 5-20%]. An additional 5% (IQR 2-10%) of the patients chose conservative care as they refused when nephrologists intended to start RRT. Patient preference (93%), severe clinical conditions (93%), vascular dementia (84%) and low physical functional status (75%) were considered extremely or quite important in the nephrologists' decision to provide conservative care. Nephrologists from countries with a low incidence of RRT, not-for-profit centres and public centres more often scored these factors as extremely or quite important than their counterparts from high-incidence countries, for-profit centres and private centres. CONCLUSIONS: Nephrologists estimated conservative care was provided to up to 15% of their patients in 2009. The presence of severe clinical conditions, vascular dementia and a low physical functional status are important factors in the decision-making not to start RRT. Patient preference was considered as a very important factor, confirming the importance of extensive patient education and shared decision-making. FAU - van de Luijtgaarden, Moniek W M AU - van de Luijtgaarden MW AD - ERA-EDTA Registry, Department of Medical Informatics, Academic Medical Center, University of Amsterdam, Amsterdam, the Netherlands. FAU - Noordzij, Marlies AU - Noordzij M FAU - van Biesen, Wim AU - van Biesen W FAU - Couchoud, Cecile AU - Couchoud C FAU - Cancarini, Giovanni AU - Cancarini G FAU - Bos, Willem-Jan W AU - Bos WJ FAU - Dekker, Friedo W AU - Dekker FW FAU - Gorriz, Jose L AU - Gorriz JL FAU - Iatrou, Christos AU - Iatrou C FAU - Wanner, Christoph AU - Wanner C FAU - Finne, Patrik AU - Finne P FAU - Stojceva-Taneva, Olivera AU - Stojceva-Taneva O FAU - Cala, Svjetlana AU - Cala S FAU - Stel, Vianda S AU - Stel VS FAU - Tomson, Charles AU - Tomson C FAU - Jager, Kitty J AU - Jager KJ LA - eng PT - Journal Article DEP - 20130907 PL - England TA - Nephrol Dial Transplant JT - Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association JID - 8706402 SB - IM MH - Adult MH - Aged MH - Data Collection MH - *Decision Making MH - Europe MH - Female MH - Humans MH - Kidney Diseases/*therapy MH - Male MH - Middle Aged MH - Nephrology/*trends MH - Physicians/*trends MH - *Practice Patterns, Physicians' MH - Prognosis MH - *Renal Dialysis MH - Renal Replacement Therapy/*trends OTO - NOTNLM OT - conservative care OT - dialysis OT - end-stage renal disease OT - opinions OT - renal replacement therapy EDAT- 2013/09/10 06:00 MHDA- 2014/04/25 06:00 CRDT- 2013/09/10 06:00 PHST- 2013/09/10 06:00 [entrez] PHST- 2013/09/10 06:00 [pubmed] PHST- 2014/04/25 06:00 [medline] AID - gft287 [pii] AID - 10.1093/ndt/gft287 [doi] PST - ppublish SO - Nephrol Dial Transplant. 2013 Oct;28(10):2604-12. doi: 10.1093/ndt/gft287. Epub 2013 Sep 7.