PMID- 25654709
OWN - NLM
STAT- MEDLINE
DCOM- 20160923
LR  - 20190610
IS  - 1538-9782 (Electronic)
IS  - 0887-6274 (Print)
IS  - 0887-6274 (Linking)
VI  - 29
IP  - 2
DP  - 2015 Mar-Apr
TI  - The life changes in epilepsy scale: development and establishment of content and 
      face validity.
PG  - 95-9
LID - 10.1097/NUR.0000000000000109 [doi]
AB  - PURPOSE/OBJECTIVES: Epilepsy is the most common chronic neurological disease in 
      the United States. Adults with epilepsy suffer downturns in quality of life. The 
      development of self-management interventions aimed at improving the quality of 
      life of adults with epilepsy is hindered by the lack of a sensitive, 
      patient-centered outcome measure. The purpose of this study was to develop the 
      Life Changes in Epilepsy Scale (LCES); a second purpose was to establish evidence 
      of the content and face validity of the LCES. METHODS: The LCES was developed 
      based on existing qualitative data and a theoretical framework derived from the 
      literature; items were developed to measure perceived changes in the areas of 
      social functioning, somatic health, and subjective well-being since epilepsy 
      onset. Content validity indices were calculated based on evaluation of the scale 
      by 3 experts in the field of epilepsy, whereas face validity was evaluated by 5 
      adults with epilepsy who were recruited from a Midwestern epilepsy clinic; 
      qualitative data regarding the appropriateness of outcomes included in the LCES 
      were also collected. RESULTS: The initial version of the LCES included 41 items. 
      Following review of the LCES by experts in which both scale- and item-content 
      validity indices of 1.0 were achieved, the number of items was reduced to 35. All 
      35 items were maintained following review of the LCES by adults with epilepsy. 
      Qualitative comments from participants supported the inclusion of outcomes 
      measured by the LCES. CONCLUSIONS/IMPLICATIONS: Results of this study provide 
      evidence of both content and face validity of the LCES. Further psychometric 
      testing of the scale is ongoing. In addition to being used as an outcome measure 
      in intervention studies, the psychometrically tested LCES can serve as a valuable 
      tool for advanced practice nurses caring for adults with epilepsy in inpatient, 
      outpatient, and community settings. The LCES can allow for a brief assessment of 
      ways in which patients' lives have been affected by epilepsy, thus allowing 
      nurses to develop targeted nursing interventions for these patients.
FAU - Miller, Wendy R
AU  - Miller WR
AD  - Author Affiliations: Assistant Professor (Dr Miller), Department of Adult Health, 
      School of Nursing, Indiana University, Bloomington; Professor and Chair (Dr 
      Bakas) and Professor (Dr Weaver) of Science of Nursing Care, School of Nursing, 
      Indiana University, Indianapolis; Vice President (Dr Buelow), Programs and 
      Research Epilepsy Foundation of America, Landover, Maryland; Assistant Professor 
      (Dr Sabau), Department of Neurology, School of Medicine, Indiana University, 
      Indianapolis.
FAU - Bakas, Tamilyn
AU  - Bakas T
FAU - Weaver, Michael T
AU  - Weaver MT
FAU - Buelow, Janice M
AU  - Buelow JM
FAU - Sabau, Dragos
AU  - Sabau D
LA  - eng
GR  - KL2 TR000163/TR/NCATS NIH HHS/United States
GR  - UL1 TR001108/TR/NCATS NIH HHS/United States
GR  - HHSN261200800001E/PHS HHS/United States
PT  - Journal Article
PT  - Research Support, N.I.H., Extramural
PL  - United States
TA  - Clin Nurse Spec
JT  - Clinical nurse specialist CNS
JID - 8709115
MH  - Adult
MH  - Advanced Practice Nursing
MH  - Epilepsy/nursing/*psychology/therapy
MH  - Humans
MH  - *Life Change Events
MH  - Nursing Assessment
MH  - Psychometrics
MH  - Quality of Life/*psychology
MH  - Reproducibility of Results
MH  - Self Care/psychology
MH  - *Surveys and Questionnaires
MH  - Treatment Outcome
PMC - PMC4319549
MID - NIHMS646568
EDAT- 2015/02/06 06:00
MHDA- 2016/09/24 06:00
PMCR- 2016/03/01
CRDT- 2015/02/06 06:00
PHST- 2015/02/06 06:00 [entrez]
PHST- 2015/02/06 06:00 [pubmed]
PHST- 2016/09/24 06:00 [medline]
PHST- 2016/03/01 00:00 [pmc-release]
AID - 00002800-201503000-00011 [pii]
AID - 10.1097/NUR.0000000000000109 [doi]
PST - ppublish
SO  - Clin Nurse Spec. 2015 Mar-Apr;29(2):95-9. doi: 10.1097/NUR.0000000000000109.