PMID- 26695733
OWN - NLM
STAT- MEDLINE
DCOM- 20160801
LR  - 20181202
IS  - 1471-2105 (Electronic)
IS  - 1471-2105 (Linking)
VI  - 16 Suppl 19
IP  - Suppl 19
DP  - 2015
TI  - An innovative electronic health records system for rare and complex diseases.
PG  - S4
LID - 10.1186/1471-2105-16-S19-S4 [doi]
AB  - BACKGROUND: There exists a large number of rare and complex diseases that are 
      neglected due to the difficulty in diagnosis and treatment. Being rare, they 
      normally do not justify the costs of developing an especialized Electronic Health 
      Record (EHR) system to assist doctors and patients of these diseases. In this 
      work we propose the use of Computer applications known as Laboratory Information 
      Management Systems (LIMS) to address this issue. RESULTS: In this work we 
      describe a fully customizable EHR system that uses a workflow based LIMS with an 
      easy to adapt interface for data collection and retrieval. This system can easily 
      be customized to manage different types of medical data. The customization for a 
      new disease can be done in a few hours with the help of a specialist. CONCLUSION: 
      We have used the proposed system to manage data from patients of three complex 
      diseases: neuromyelitis optica, paracoccidioidomycosis and adrenoleukodistrofy. 
      These diseases have very different symptoms, exams, diagnostics and treatments, 
      but the FluxMED system is able to manage these data in a highly specialized 
      manner without any modifications to its code.
FAU - Faria-Campos, Alessandra C
AU  - Faria-Campos AC
FAU - Hanke, Lucas A
AU  - Hanke LA
FAU - Batista, Paulo H S
AU  - Batista PH
FAU - Garcia, Vinicius
AU  - Garcia V
FAU - Campos, Sergio V A
AU  - Campos SV
LA  - eng
PT  - Journal Article
PT  - Research Support, Non-U.S. Gov't
DEP - 20151216
PL  - England
TA  - BMC Bioinformatics
JT  - BMC bioinformatics
JID - 100965194
SB  - IM
MH  - *Electronic Health Records
MH  - Humans
MH  - Internet
MH  - *Inventions
MH  - Rare Diseases/*epidemiology
MH  - Software
MH  - User-Computer Interface
MH  - Workflow
PMC - PMC4686787
EDAT- 2015/12/24 06:00
MHDA- 2016/08/02 06:00
PMCR- 2015/12/16
CRDT- 2015/12/24 06:00
PHST- 2015/12/24 06:00 [entrez]
PHST- 2015/12/24 06:00 [pubmed]
PHST- 2016/08/02 06:00 [medline]
PHST- 2015/12/16 00:00 [pmc-release]
AID - 1471-2105-16-S19-S4 [pii]
AID - 10.1186/1471-2105-16-S19-S4 [doi]
PST - ppublish
SO  - BMC Bioinformatics. 2015;16 Suppl 19(Suppl 19):S4. doi: 
      10.1186/1471-2105-16-S19-S4. Epub 2015 Dec 16.