PMID- 27179010 OWN - NLM STAT- MEDLINE DCOM- 20171113 LR - 20220331 IS - 1932-2968 (Electronic) IS - 1932-2968 (Linking) VI - 10 IP - 5 DP - 2016 Sep TI - Registry of Youth Onset Diabetes in India (YDR): Rationale, Recruitment, and Current Status. PG - 1034-41 LID - 10.1177/1932296816645121 [doi] AB - BACKGROUND: With the aim of addressing the relative scarcity of information on youth-onset diabetes in India, the Indian Council of Medical Research (ICMR) decided to establish the Registry of People with Diabetes with Young Age at Onset (YDR) in 2006. The major objectives of YDR are to generate information on disease pattern or types of youth-onset diabetes including their geographical variations within India and to estimate the burden of diabetes complications. METHODS: YDR is an observational multicenter clinic based registry enlisting physician diagnosed diabetes in individuals below 25 years of age. Diabetes was classified using symptom based clinical criteria. YDR data collection is coordinated through regional collaborating centers and their interacting reporting centers across India. A baseline and an annual follow-up proformas are used to obtain information on sociodemographic details, clinical profile, and anthropometric and laboratory measurements of the patients. RESULTS: In phase 1, the registry has enrolled 5546 patients, in which type 1 diabetes mellitus (T1DM) was the most prevalent (63.9%), followed by youth-onset type 2 diabetes mellitus (T2DM) (25.3%). CONCLUSION: This registry provides a unique opportunity to study the natural history of youth-onset diabetes in India. CI - (c) 2016 Diabetes Technology Society. FAU - Praveen, Pradeep A AU - Praveen PA AD - All India Institute of Medical Sciences, New Delhi, India. FAU - Madhu, Sri Venkata AU - Madhu SV AD - University College of Medical Sciences, Delhi, India. FAU - Mohan, Viswanathan AU - Mohan V AD - Madras Diabetes Research Foundation, Chennai, India. FAU - Das, Siddhartha AU - Das S AD - SCB Medical College and Hospital, Cuttuck, India. FAU - Kakati, Sanjeeb AU - Kakati S AD - Assam Medical College, Dibrugarh, Assam, India. FAU - Shah, Nalini AU - Shah N AD - Seth G S Medical College & K.E.M. Hospital, Mumbai, India. FAU - Chaddha, Manoj AU - Chaddha M AD - PD Hinduja Hospital and Medical Research Centre, Mumbai, India. FAU - Bhadada, Sanjay Kumar AU - Bhadada SK AD - Post Graduate Institute of Medical Education and Research, Chandigarh, India. FAU - Das, Ashok Kumar AU - Das AK AD - Pondicherry Institute of Medical Sciences, Puducherry, India. FAU - Shukla, Deepak Kumar AU - Shukla DK AD - Indian Council of Medical Research, New Delhi, India. FAU - Kaur, Tanvir AU - Kaur T AD - Indian Council of Medical Research, New Delhi, India. FAU - Tandon, Nikhil AU - Tandon N AD - All India Institute of Medical Sciences, New Delhi, India nikhil_tandon@hotmail.com. LA - eng PT - Journal Article PT - Multicenter Study PT - Observational Study PT - Research Support, Non-U.S. Gov't DEP - 20160822 PL - United States TA - J Diabetes Sci Technol JT - Journal of diabetes science and technology JID - 101306166 SB - IM MH - Diabetes Mellitus, Type 1/*epidemiology MH - Diabetes Mellitus, Type 2/*epidemiology MH - Female MH - Humans MH - India/epidemiology MH - Male MH - *Registries PMC - PMC5032954 OTO - NOTNLM OT - diabetes registry OT - type 1 diabetes OT - type 2 diabetes OT - youth-onset diabetes COIS- The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article. EDAT- 2016/05/15 06:00 MHDA- 2017/11/14 06:00 PMCR- 2017/05/12 CRDT- 2016/05/15 06:00 PHST- 2016/05/15 06:00 [entrez] PHST- 2016/05/15 06:00 [pubmed] PHST- 2017/11/14 06:00 [medline] PHST- 2017/05/12 00:00 [pmc-release] AID - 1932296816645121 [pii] AID - 10.1177_1932296816645121 [pii] AID - 10.1177/1932296816645121 [doi] PST - epublish SO - J Diabetes Sci Technol. 2016 Aug 22;10(5):1034-41. doi: 10.1177/1932296816645121. Print 2016 Sep.