PMID- 27194322
OWN - NLM
STAT- MEDLINE
DCOM- 20171206
LR  - 20211204
IS  - 2044-6055 (Electronic)
IS  - 2044-6055 (Linking)
VI  - 6
IP  - 5
DP  - 2016 May 18
TI  - Why take the chance? A qualitative grounded theory study of nocturnal 
      haemodialysis recipients who decline kidney transplantation.
PG  - e011951
LID - 10.1136/bmjopen-2016-011951 [doi]
LID - e011951
AB  - OBJECTIVE: The objective of this study was to examine the factors that influence 
      decision-making to forgo transplantation in favour of remaining on nocturnal 
      haemodialysis (NHD). DESIGN: A grounded theory approach using in-depth telephone 
      interviewing was used. SETTING: Participants were identified from 2 tertiary care 
      renal programmes in Canada. PARTICIPANTS: The study participants were otherwise 
      eligible patients with end-stage renal disease who have opted to remain off of 
      the transplant list. A total of 7 eligible participants were interviewed. 5 were 
      male. The mean age was 46 years. ANALYSIS: A constant comparative method of 
      analysis was used to identify a core category and factors influencing the 
      decision-making process. RESULTS: In this grounded theory study of people 
      receiving NHD who refused kidney transplantation, the core category of 'why take 
      a chance when things are going well?' was identified, along with 4 factors that 
      influenced the decision including 'negative past experience', 'feeling well on 
      NHD', 'gaining autonomy' and 'responsibility'. CONCLUSIONS: This study provides 
      insight into patients' thought processes surrounding an important treatment 
      decision. Such insights might help the renal team to better understand, and 
      thereby respect, patient choice in a patient-centred care paradigm. Findings may 
      also be useful in the development of education programmes addressing the specific 
      concerns of this population of patients.
CI  - Published by the BMJ Publishing Group Limited. For permission to use (where not 
      already granted under a licence) please go to 
      http://www.bmj.com/company/products-services/rights-and-licensing/
FAU - Rosenthal, Meagen M
AU  - Rosenthal MM
AD  - Department of Pharmacy Administration, University of Mississippi, Oxford, 
      Mississippi, USA.
FAU - Molzahn, Anita E
AU  - Molzahn AE
AD  - Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada.
FAU - Chan, Christopher T
AU  - Chan CT
AD  - Division of Nephrology, University Health Network, University of Toronto, 
      Toronto, Ontario, Canada.
FAU - Cockfield, Sandra L
AU  - Cockfield SL
AD  - Division of Nephrology, University of Alberta, Edmonton, Alberta, Canada.
FAU - Kim, S Joseph
AU  - Kim SJ
AD  - Division of Nephrology, University Health Network, University of Toronto, 
      Toronto, Ontario, Canada.
FAU - Pauly, Robert P
AU  - Pauly RP
AD  - Division of Nephrology, University of Alberta, Edmonton, Alberta, Canada.
LA  - eng
PT  - Journal Article
DEP - 20160518
PL  - England
TA  - BMJ Open
JT  - BMJ open
JID - 101552874
SB  - IM
MH  - Adult
MH  - Decision Making
MH  - Diet
MH  - Female
MH  - Grounded Theory
MH  - Health Status
MH  - Humans
MH  - Immunosuppression Therapy/adverse effects
MH  - Interviews as Topic
MH  - Kidney Failure, Chronic/*therapy
MH  - Kidney Transplantation/adverse effects/*psychology
MH  - Male
MH  - Middle Aged
MH  - Personal Autonomy
MH  - Qualitative Research
MH  - Renal Dialysis/methods/*psychology
MH  - Self Care
MH  - Treatment Refusal/*psychology
MH  - Uncertainty
PMC - PMC4874163
OTO - NOTNLM
OT  - Decision-making
OT  - grounded theory
OT  - nocturnal hemodialysis
EDAT- 2016/05/20 06:00
MHDA- 2017/12/07 06:00
PMCR- 2016/05/18
CRDT- 2016/05/20 06:00
PHST- 2016/05/20 06:00 [entrez]
PHST- 2016/05/20 06:00 [pubmed]
PHST- 2017/12/07 06:00 [medline]
PHST- 2016/05/18 00:00 [pmc-release]
AID - bmjopen-2016-011951 [pii]
AID - 10.1136/bmjopen-2016-011951 [doi]
PST - epublish
SO  - BMJ Open. 2016 May 18;6(5):e011951. doi: 10.1136/bmjopen-2016-011951.