PMID- 28411521
OWN - NLM
STAT- MEDLINE
DCOM- 20180109
LR  - 20181202
IS  - 1525-5069 (Electronic)
IS  - 1525-5050 (Linking)
VI  - 70
IP  - Pt A
DP  - 2017 May
TI  - The experience of epilepsy in later life: A qualitative exploration of illness 
      representations.
PG  - 87-93
LID - S1525-5050(16)30620-5 [pii]
LID - 10.1016/j.yebeh.2017.01.033 [doi]
AB  - The objective of this study was to explore how older people living with epilepsy 
      appraise their condition through their lived-experience. The common-sense model 
      of illness representations (CSMIR) provides a framework to explain how 
      individuals make sense of and manage health threats. Semi-structured in-depth 
      interviews based on the CSMIR were conducted with ten people with epilepsy who 
      were above the age of 65. The results were analyzed using Interpretative 
      Phenomenological Analysis. Three overarching themes emerged from the analysis: 
      'the power of epilepsy', 'they say you can live a normal life but you can't' and 
      'attempts to adjust and cope'. Epilepsy was described as a threatening, 
      persistent, and unpredictable condition associated with distressing experiences. 
      Participants described a process of balancing negative psychosocial consequences 
      including stigma, loss of control, and reliance on other people and medication 
      with parallel co-existing coping strategies. These attempts to manage the 
      condition were characterized by a desire for acceptance and increased awareness 
      of epilepsy, strategies to restore loss of control, and strength derived from 
      supportive relationships. We conclude that there is large scope for psychosocial 
      interventions in healthcare provision for this patient group. The roles of 
      specialist nursing, relationship-centered models, psychotherapy, educational, and 
      self-management programs are highlighted.
CI  - Copyright (c) 2017 Elsevier Inc. All rights reserved.
FAU - Yennadiou, Haris
AU  - Yennadiou H
AD  - The University of Hull, Faculty of Health and Social Care, Aire Building, Hull, 
      Cottingham Road, Hull HU6 7RX, UK. Electronic address: hyennadiou@nhs.net.
FAU - Wolverson, Emma
AU  - Wolverson E
AD  - The University of Hull, Faculty of Health and Social Care, Aire Building, Hull, 
      Cottingham Road, Hull HU6 7RX, UK. Electronic address: e.wolverson@hull.ac.uk.
LA  - eng
PT  - Journal Article
DEP - 20170413
PL  - United States
TA  - Epilepsy Behav
JT  - Epilepsy & behavior : E&B
JID - 100892858
SB  - IM
MH  - *Adaptation, Psychological/physiology
MH  - Aged
MH  - Aged, 80 and over
MH  - Epilepsy/*diagnosis/*psychology/therapy
MH  - Female
MH  - Health Personnel/psychology/standards
MH  - Humans
MH  - Male
MH  - Motivation/physiology
MH  - Psychotherapy/methods/standards
MH  - *Qualitative Research
MH  - Quality of Life/psychology
MH  - *Social Stigma
OTO - NOTNLM
OT  - Epilepsy
OT  - Illness representations
OT  - Interpretative phenomenological analysis (IPA)
OT  - Nurse specialist
OT  - Older people
EDAT- 2017/04/16 06:00
MHDA- 2018/01/10 06:00
CRDT- 2017/04/16 06:00
PHST- 2016/10/30 00:00 [received]
PHST- 2017/01/08 00:00 [accepted]
PHST- 2017/04/16 06:00 [pubmed]
PHST- 2018/01/10 06:00 [medline]
PHST- 2017/04/16 06:00 [entrez]
AID - S1525-5050(16)30620-5 [pii]
AID - 10.1016/j.yebeh.2017.01.033 [doi]
PST - ppublish
SO  - Epilepsy Behav. 2017 May;70(Pt A):87-93. doi: 10.1016/j.yebeh.2017.01.033. Epub 
      2017 Apr 13.