PMID- 28784137
OWN - NLM
STAT- MEDLINE
DCOM- 20180402
LR  - 20191210
IS  - 1472-6963 (Electronic)
IS  - 1472-6963 (Linking)
VI  - 17
IP  - 1
DP  - 2017 Aug 7
TI  - Measuring patient outcomes in chronic heart failure: psychometric properties of 
      the Care-Related Quality of Life survey for Chronic Heart Failure (CaReQoL CHF).
PG  - 536
LID - 10.1186/s12913-017-2452-4 [doi]
LID - 536
AB  - BACKGROUND: The Care-Related Quality of Life survey for Chronic Heart Failure 
      (CaReQoL CHF) is a newly developed patient-reported outcome measure (PROM) that 
      measures care-related quality of life in patients diagnosed with chronic heart 
      failure. This study describes the psychometric properties of the questionnaire 
      and its relationship with disease severity and global rating of quality of care. 
      METHOD: Insurance companies selected patients with a recorded diagnosis of 
      chronic heart failure and for whom the hospital submitted a billing statement in 
      the last year. Exploratory factor analysis, Cronbach's alpha and item-rest 
      correlation were used to construct the CaReQoL CHF. Construct validity was 
      assessed by examining the mean values of the CaReQoL CHF scales for the 
      categories of the widely-used New York Heart Association (NYHA) functional 
      classification and by correlating the global rating of quality of care with the 
      CaReQoL CHF scales. RESULTS: One thousand eighteen patients with chronic heart 
      failure filled out the CaReQoL CHF (RR: 35.7%). The CaReQoL CHF consists of 20 
      items and three scales: social and emotional problems, physical limitations, and 
      being in safe hands. The mean scores of the three scales differed significantly 
      for the NYHA categories, particularly for the social-emotional problems and 
      physical limitation scales. The 'being in safe hands' scale showed a moderate 
      positive correlation with the global rating of quality of care. CONCLUSIONS: The 
      CaReQoL CHF is a concise and valid PROM that matches patients' priorities in 
      healthcare. It adds a new element to existing quality of life questionnaires for 
      patients with chronic heart failure, that is 'being in safe hands' scale. This 
      scale is relevant for patients because they experience anxiety and tension about 
      their condition. Future research should determine whether the CaReQoL CHF can 
      help healthcare providers in daily practice to focus treatment on outcomes of 
      care that are relevant to individual patients.
FAU - van Kessel, Paul
AU  - van Kessel P
AD  - Netherlands Institute for Health Services Research (NIVEL), Utrecht, Netherlands.
FAU - de Boer, Dolf
AU  - de Boer D
AD  - Netherlands Institute for Health Services Research (NIVEL), Utrecht, Netherlands.
FAU - Hendriks, Michelle
AU  - Hendriks M
AUID- ORCID: 0000-0002-7924-6294
AD  - Netherlands Institute for Health Services Research (NIVEL), Utrecht, Netherlands. 
      m.hendriks@nivel.nl.
FAU - Plass, Anne Marie
AU  - Plass AM
AD  - Netherlands Institute for Health Services Research (NIVEL), Utrecht, Netherlands.
AD  - University Medical Center Gottingen (UMG)/ Georg-August-University, Institute of 
      Medical Psychology and Medical Sociology, Gottingen, Germany.
LA  - eng
PT  - Journal Article
DEP - 20170807
PL  - England
TA  - BMC Health Serv Res
JT  - BMC health services research
JID - 101088677
SB  - IM
MH  - Aged
MH  - Aged, 80 and over
MH  - *Chronic Disease
MH  - Factor Analysis, Statistical
MH  - Female
MH  - *Heart Failure/therapy
MH  - Humans
MH  - Male
MH  - Middle Aged
MH  - New York
MH  - Outcome Assessment, Health Care
MH  - Psychometrics
MH  - *Quality of Life
MH  - Surveys and Questionnaires/*standards
PMC - PMC5547511
COIS- ETHICS APPROVAL AND CONSENT TO PARTICIPATE: No ethical approval and formal 
      consent for participation was necessary, as research by a non-encroaching survey 
      such as used in this study is not subject to the Dutch Medical Research Involving 
      Human Subjects Act (WMO). CONSENT FOR PUBLICATION: No consent for publication was 
      requested since the manuscript does not contain any data that can be related to 
      an individual participant. COMPETING INTERESTS: The authors declare that they 
      have no competing interests. PUBLISHER'S NOTE: Springer Nature remains neutral 
      with regard to jurisdictional claims in published maps and institutional 
      affiliations.
EDAT- 2017/08/09 06:00
MHDA- 2018/04/03 06:00
PMCR- 2017/08/07
CRDT- 2017/08/09 06:00
PHST- 2017/02/09 00:00 [received]
PHST- 2017/07/17 00:00 [accepted]
PHST- 2017/08/09 06:00 [entrez]
PHST- 2017/08/09 06:00 [pubmed]
PHST- 2018/04/03 06:00 [medline]
PHST- 2017/08/07 00:00 [pmc-release]
AID - 10.1186/s12913-017-2452-4 [pii]
AID - 2452 [pii]
AID - 10.1186/s12913-017-2452-4 [doi]
PST - epublish
SO  - BMC Health Serv Res. 2017 Aug 7;17(1):536. doi: 10.1186/s12913-017-2452-4.