PMID- 28868210
OWN - NLM
STAT- PubMed-not-MEDLINE
LR  - 20200929
IS  - 2161-0711 (Print)
IS  - 2161-0711 (Electronic)
VI  - 7
IP  - 2
DP  - 2017 Apr
TI  - Stroke Investigative Research and Education Network: Public Outreach and 
      Engagement.
LID - 518 [pii]
LID - 10.4172/2161-0711.1000518 [doi]
AB  - Stroke is becoming a leading cause of disability and death, and a major public 
      health concern in Sub-Saharan Africa (SSA). The Stroke Investigative Research and 
      Education Network (SIREN) seeks to comprehensively characterize the genomic, 
      sociocultural, economic, and behavioral risk factors for stroke and to build 
      effective teams for research to address and decrease the burden of stroke and 
      other non-communicable diseases in SSA. One of the first steps to address this 
      goal was to effectively engage the communities that suffer high burdens of 
      disease in SSA. This paper describes the process of SIREN project's community 
      engagement activities in Ghana and Nigeria. The aims of community engagement (CE) 
      within SIREN are to: i) elucidate information about knowledge, attitudes, 
      beliefs, and practices (KABP) about stroke and its risk factors from individuals 
      of African ancestry in SSA; ii) educate the community about stroke and ways to 
      decrease disabilities and deaths from stroke; and iii) recruit 3000 control 
      research subjects to participate in a case-control stroke study. CE focused on 
      three-pronged activities-constitution and interaction with Community Advisory 
      Board (CABs), Focus Group Discussions (n=27) and community education and outreach 
      programs (n=88). FGDs and outreach programs indicate that knowledge of stroke, as 
      well as risk factors and follow-up evidence-based care is limited and often late. 
      Almost all indicated that genetic testing could help health provider's better 
      treat stroke and help scientists better understand the causes of stroke. Over 
      7000 individuals have received education on cardiovascular risk factors and about 
      5,000 have been screened for cardiovascular risk factors during the outreaches. 
      The CE core within SIREN is a first of its kind public outreach engagement 
      initiative to evaluate and address perceptions about stroke and genomics by 
      patients, caregivers, and local leaders in SSA and has implications as a model 
      for assessment in other high stroke risk populations.
FAU - Singh, A
AU  - Singh A
AD  - Department of Public Health, KNUST Hospital, Kumasi, Ghana.
FAU - Jenkins, C
AU  - Jenkins C
AD  - Department of Public Health, KNUST Hospital, Kumasi, Ghana.
FAU - Calys-Tagoe, B
AU  - Calys-Tagoe B
AD  - Department of Public Health, KNUST Hospital, Kumasi, Ghana.
FAU - Arulogun, O S
AU  - Arulogun OS
AD  - Department of Public Health, KNUST Hospital, Kumasi, Ghana.
FAU - Sarfo, S
AU  - Sarfo S
AD  - Department of Public Health, KNUST Hospital, Kumasi, Ghana.
FAU - Ovbiagele, B
AU  - Ovbiagele B
AD  - Department of Public Health, KNUST Hospital, Kumasi, Ghana.
FAU - Akpalu, A
AU  - Akpalu A
AD  - Department of Public Health, KNUST Hospital, Kumasi, Ghana.
FAU - Melikam, S
AU  - Melikam S
AD  - Department of Public Health, KNUST Hospital, Kumasi, Ghana.
FAU - Uvere, E
AU  - Uvere E
AD  - Department of Public Health, KNUST Hospital, Kumasi, Ghana.
FAU - Owolabi, M O
AU  - Owolabi MO
AD  - Department of Public Health, KNUST Hospital, Kumasi, Ghana.
LA  - eng
GR  - U54 HG007479/HG/NHGRI NIH HHS/United States
PT  - Journal Article
DEP - 20170424
PL  - United States
TA  - J Community Med Health Educ
JT  - Journal of community medicine & health education
JID - 101580953
PMC - PMC5577935
MID - NIHMS889982
OTO - NOTNLM
OT  - Community
OT  - Community advisory boards
OT  - Engagement
OT  - Focus group discussions
OT  - Outreach
OT  - Stroke
OT  - Sub-Saharan Africa
EDAT- 2017/09/05 06:00
MHDA- 2017/09/05 06:01
PMCR- 2017/08/31
CRDT- 2017/09/05 06:00
PHST- 2017/09/05 06:00 [entrez]
PHST- 2017/09/05 06:00 [pubmed]
PHST- 2017/09/05 06:01 [medline]
PHST- 2017/08/31 00:00 [pmc-release]
AID - 518 [pii]
AID - 10.4172/2161-0711.1000518 [doi]
PST - ppublish
SO  - J Community Med Health Educ. 2017 Apr;7(2):518. doi: 10.4172/2161-0711.1000518. 
      Epub 2017 Apr 24.