PMID- 29952216
OWN - NLM
STAT- MEDLINE
DCOM- 20190729
LR  - 20190729
IS  - 2369-5293 (Electronic)
IS  - 0825-8597 (Linking)
VI  - 34
IP  - 2
DP  - 2019 Apr
TI  - Using Patients and Their Caregivers Feedback to Develop ENABLE CHF-PC: An Early 
      Palliative Care Intervention for Advanced Heart Failure.
PG  - 103-110
LID - 10.1177/0825859718785231 [doi]
AB  - OBJECTIVE: Models of early, community-based palliative care for individuals with 
      New York Heart Association (NYHA) class III/IV heart failure and their families 
      are lacking. We used the Medical Research Council process of developing complex 
      interventions to conduct a formative evaluation study to translate an early 
      palliative care intervention from cancer to heart failure. METHOD: One component 
      of the parent formative evaluation pilot study was qualitative satisfaction 
      interviews with 8 patient-caregiver dyad participants who completed Educate, 
      Nurture, Advise, Before Life Ends Comprehensive Heartcare For Patient and 
      Caregivers (ENABLE CHF-PC) intervention. The ENABLE CHF-PC consists of an 
      in-person palliative care assessment, weekly telehealth coaching sessions, and 
      monthly follow-up. Subsequent to completing the coaching sessions, patient and 
      caregiver participants were interviewed to elicit their experiences with ENABLE 
      CHF-PC. Digitally recorded interviews were transcribed and analyzed using a 
      thematic approach. RESULTS: Patients (n = 8) mean age was 67.3, 62.5% were 
      female, 75% were married/living with a partner; caregivers (n = 8) mean age was 
      56.8, and 87.5% were female. Four themes related to experiences with ENABLE 
      CHF-PC included "allowed me to vent," "gained perspective," "helped me plan," and 
      "gained illness management and decision-making skills." Recommendations for 
      intervention modification included (1) start program at diagnosis, (2) maintain 
      phone-based approach, and (3) expand topics and modify format. CONCLUSION: 
      Patients and caregivers unanimously found the intervention to be helpful and 
      acceptable. After incorporating modifications, ENABLE CHF-PC is currently 
      undergoing efficacy testing in a large randomized controlled trial.
FAU - Akyar, Imatullah
AU  - Akyar I
AD  - 1 Faculty of Nursing, Hacettepe University, Ankara, Turkey.
AD  - 2 School of Nursing, University of Alabama at Birmingham, Birmingham, AL, USA.
FAU - Dionne-Odom, J Nicholas
AU  - Dionne-Odom JN
AD  - 2 School of Nursing, University of Alabama at Birmingham, Birmingham, AL, USA.
AD  - 3 Division of Geriatrics, Gerontology, and Palliative Care, Department of 
      Medicine, University of Alabama at Birmingham Center for Palliative and 
      Supportive Care, Birmingham, AL, USA.
FAU - Bakitas, Marie A
AU  - Bakitas MA
AD  - 2 School of Nursing, University of Alabama at Birmingham, Birmingham, AL, USA.
AD  - 3 Division of Geriatrics, Gerontology, and Palliative Care, Department of 
      Medicine, University of Alabama at Birmingham Center for Palliative and 
      Supportive Care, Birmingham, AL, USA.
LA  - eng
PT  - Journal Article
DEP - 20180628
PL  - United States
TA  - J Palliat Care
JT  - Journal of palliative care
JID - 8610345
MH  - Adult
MH  - Aged
MH  - Aged, 80 and over
MH  - Cardiovascular Nursing/*methods
MH  - Caregivers/*psychology
MH  - Female
MH  - Formative Feedback
MH  - Heart Failure/*nursing
MH  - Hospice and Palliative Care Nursing/*methods
MH  - Humans
MH  - Male
MH  - Middle Aged
MH  - Palliative Care/*methods
MH  - Patient Participation/*psychology
OTO - NOTNLM
OT  - formative evaluation
OT  - heart failure
OT  - palliative care
OT  - patient and caregiver perspectives
OT  - qualitative research
EDAT- 2018/06/29 06:00
MHDA- 2019/07/30 06:00
CRDT- 2018/06/29 06:00
PHST- 2018/06/29 06:00 [pubmed]
PHST- 2019/07/30 06:00 [medline]
PHST- 2018/06/29 06:00 [entrez]
AID - 10.1177/0825859718785231 [doi]
PST - ppublish
SO  - J Palliat Care. 2019 Apr;34(2):103-110. doi: 10.1177/0825859718785231. Epub 2018 
      Jun 28.