PMID- 30607984
OWN - NLM
STAT- MEDLINE
DCOM- 20190308
LR  - 20190308
IS  - 1943-572X (Electronic)
IS  - 0003-4894 (Linking)
VI  - 128
IP  - 4
DP  - 2019 Apr
TI  - The Online Support Group as a Community: A Thematic Content Analysis of an Online 
      Support Group for Idiopathic Subglottic Stenosis.
PG  - 293-299
LID - 10.1177/0003489418820348 [doi]
AB  - OBJECTIVE: Idiopathic subglottic stenosis (iSGS) is a rare disease with few local 
      resources for individuals to use. With the explosive growth of online social 
      networking, platforms such as Facebook possess compelling potential to facilitate 
      user-driven sharing of health information and peer support. This study was 
      performed to better understand the content shared in a busy online community for 
      individuals with iSGS. METHODS: The largest online community (OC) for individuals 
      with iSGS, Living With Idiopathic Subglottic Stenosis (LwiSGS), was examined. A 
      thematic content analysis of the communications shared in February of 2018 was 
      performed. A conventional qualitative analysis model was employed to analyze 
      aggregated data. The data were then codified. RESULTS: Analysis demonstrated that 
      communications primarily encompassed three major thematic elements: (1) 
      information sharing; (2) emotional support, expression, and experience sharing; 
      and (3) community building. Positively toned posts grossly overshadowed 
      negatively toned posts by almost a factor of 3. A significant portion of group 
      members requested information from their peers, suggesting a high level of trust 
      toward the resources provided in this group, even those involving a surgical 
      procedure or medication. CONCLUSION: LwiSGS is a forum for patients with a rare 
      chronic condition to share informational resources, personal experiences, and 
      emotional support, as well as a community with their peers. These data suggest 
      that LwiSGS could be a powerful resource for individuals with iSGS to share 
      information, personal experiences, or emotional support.
FAU - Haik, Daniel
AU  - Haik D
AUID- ORCID: 0000-0001-5789-7881
AD  - 1 University Voice and Swallowing Center, Department of Otolaryngology-Head and 
      Neck Surgery, UC Irvine School of Medicine, Irvine, CA, USA.
FAU - Kashanchi, Kevin
AU  - Kashanchi K
AD  - 1 University Voice and Swallowing Center, Department of Otolaryngology-Head and 
      Neck Surgery, UC Irvine School of Medicine, Irvine, CA, USA.
FAU - Tajran, Sarah
AU  - Tajran S
AD  - 1 University Voice and Swallowing Center, Department of Otolaryngology-Head and 
      Neck Surgery, UC Irvine School of Medicine, Irvine, CA, USA.
FAU - Heilbronn, Cameron
AU  - Heilbronn C
AD  - 1 University Voice and Swallowing Center, Department of Otolaryngology-Head and 
      Neck Surgery, UC Irvine School of Medicine, Irvine, CA, USA.
FAU - Anderson, Catherine
AU  - Anderson C
AD  - 2 Australian Market and Social Research Society, Glebe, New South Wales, 
      Australia.
FAU - Francis, David Oliver
AU  - Francis DO
AD  - 3 University of Wisconsin-Madison, Madison, WI, USA.
FAU - Gelbard, Alexander
AU  - Gelbard A
AD  - 4 Vanderbilt School of Medicine, Nashville, TN, USA.
FAU - Verma, Sunil Pal
AU  - Verma SP
AD  - 1 University Voice and Swallowing Center, Department of Otolaryngology-Head and 
      Neck Surgery, UC Irvine School of Medicine, Irvine, CA, USA.
LA  - eng
PT  - Journal Article
DEP - 20190104
PL  - United States
TA  - Ann Otol Rhinol Laryngol
JT  - The Annals of otology, rhinology, and laryngology
JID - 0407300
SB  - IM
MH  - *Access to Information
MH  - *Disease Management
MH  - Emotions
MH  - Female
MH  - Global Health/trends
MH  - Humans
MH  - Information Dissemination/*methods
MH  - *Internet
MH  - *Laryngostenosis/epidemiology/psychology
MH  - Male
MH  - Psychosocial Support Systems
MH  - *Self-Help Groups/organization & administration/trends
OTO - NOTNLM
OT  - laryngology
OT  - laryngotracheal reconstruction
OT  - miscellaneous
OT  - otolaryngology
OT  - quality of life
OT  - subglottic stenosis
OT  - tracheal stenosis
EDAT- 2019/01/05 06:00
MHDA- 2019/03/09 06:00
CRDT- 2019/01/05 06:00
PHST- 2019/01/05 06:00 [pubmed]
PHST- 2019/03/09 06:00 [medline]
PHST- 2019/01/05 06:00 [entrez]
AID - 10.1177/0003489418820348 [doi]
PST - ppublish
SO  - Ann Otol Rhinol Laryngol. 2019 Apr;128(4):293-299. doi: 10.1177/0003489418820348. 
      Epub 2019 Jan 4.