PMID- 30615543
OWN - NLM
STAT- MEDLINE
DCOM- 20200911
LR  - 20200911
IS  - 1557-7740 (Electronic)
IS  - 1557-7740 (Linking)
VI  - 22
IP  - 5
DP  - 2019 May
TI  - Palliative Care Volunteers Have High Workload but No Burnout: A Questionnaire 
      Survey from Tanzania.
PG  - 493-499
LID - 10.1089/jpm.2018.0246 [doi]
AB  - Background: In Africa, the core of home-based care (HBC) in the villages is 
      provided by volunteer helpers, individuals chosen to provide both support to 
      patients and important information to health officers. Yet, voluntary work in 
      palliative care and the burden of being a volunteer have not been studied in 
      Africa. Objective: To study the content and burden of volunteer work in the 
      palliative home care of Ilembula District Designated Hospital (IDDH), a secondary 
      care institution in Tanzania. Design: A descriptive prospective study using 
      semistructured and closed questionnaires. Setting/subjects: The modified 
      Palliative Care Evaluation Tool Kit (PCETK) and Professional Quality-of-Life 
      Scale (ProQOL) were used to study the work content and workload of 47 volunteers 
      in the palliative HBC of IDDH. ProQOL was translated to Kiswahili. Fifty-seven 
      health care professionals and students validated the translation. Factorial 
      analysis and Cronbach's alphas were calculated for reliability. Results: 
      Responses to PCETK and ProQOL were received from 34 (72%) to 20 (42%) volunteers, 
      respectively. The Kiswahili translation of ProQSL appeared to be highly reliable. 
      On average, a volunteer worked 20 hours/month and had 22 patients. The main 
      activities included helping with daily tasks, preparing meals, assisting with 
      transport, and reporting the patient's clinical condition to the health care 
      officers. The volunteers reported high satisfaction ratings (average 4.2, 
      standard deviations 0.38) and had higher scores than the validation group in the 
      compassion fatigue scale (2.42 vs. 1.55, p < 0.01) but no burnout. Conclusions: 
      The volunteers had high commitment and workload. Even so, coping strategies for 
      dealing with suffering and death should be better addressed in training.
FAU - Poyhia, Reino
AU  - Poyhia R
AD  - 1 Department of Clinical Medicin, Oncology and Radiotherapy, Division of 
      Palliative Medicine, University of Turku, Turku, Finland.
AD  - 2 Department of Anaesthesiology and Intensive Care Medicine, Helsinki University 
      Hospital, University of Helsinki, Helsinki, Finland.
AD  - 3 Kauniala Hospital, Kauniainen, Ilembula, Finland.
FAU - Jaatinen, Anna
AU  - Jaatinen A
AD  - 1 Department of Clinical Medicin, Oncology and Radiotherapy, Division of 
      Palliative Medicine, University of Turku, Turku, Finland.
FAU - Niemi-Murola, Leila
AU  - Niemi-Murola L
AD  - 2 Department of Anaesthesiology and Intensive Care Medicine, Helsinki University 
      Hospital, University of Helsinki, Helsinki, Finland.
FAU - Mtega, Aida
AU  - Mtega A
AD  - 4 Ilembula District Designated Hospital, Tanzania.
FAU - Mpumilwa, Godfrey
AU  - Mpumilwa G
AD  - 4 Ilembula District Designated Hospital, Tanzania.
FAU - Mmbando, Paul
AU  - Mmbando P
AD  - 5 Headquarters of the Evangelic Lutheran Church of Tanzania, Arusha, Tanzania.
LA  - eng
PT  - Journal Article
PT  - Research Support, Non-U.S. Gov't
DEP - 20190107
PL  - United States
TA  - J Palliat Med
JT  - Journal of palliative medicine
JID - 9808462
SB  - IM
MH  - Adult
MH  - Burnout, Professional/*psychology
MH  - Cross-Sectional Studies
MH  - Female
MH  - Health Personnel/*psychology/statistics & numerical data
MH  - Home Health Aides/*psychology/statistics & numerical data
MH  - Humans
MH  - Male
MH  - Middle Aged
MH  - Palliative Care/*psychology
MH  - Prospective Studies
MH  - Reproducibility of Results
MH  - Surveys and Questionnaires
MH  - Tanzania
MH  - Volunteers/*psychology/statistics & numerical data
MH  - Workload/*psychology/statistics & numerical data
OTO - NOTNLM
OT  - home-based care
OT  - palliative care
OT  - relationships
OT  - volunteer
OT  - vulnerability
OT  - women
EDAT- 2019/01/08 06:00
MHDA- 2020/09/12 06:00
CRDT- 2019/01/08 06:00
PHST- 2019/01/08 06:00 [pubmed]
PHST- 2020/09/12 06:00 [medline]
PHST- 2019/01/08 06:00 [entrez]
AID - 10.1089/jpm.2018.0246 [doi]
PST - ppublish
SO  - J Palliat Med. 2019 May;22(5):493-499. doi: 10.1089/jpm.2018.0246. Epub 2019 Jan 
      7.