PMID- 30799721
OWN - NLM
STAT- MEDLINE
DCOM- 20190403
LR  - 20190403
IS  - 2150-136X (Electronic)
IS  - 2150-1351 (Linking)
VI  - 10
IP  - 1
DP  - 2019 Jan
TI  - IMPACT Registry and National Pediatric Cardiology Quality Improvement 
      Collaborative: Contributions to Quality in Congenital Heart Disease.
PG  - 72-80
LID - 10.1177/2150135118815059 [doi]
AB  - The IMproving Pediatric and Adult Congenital Treatments (IMPACT) Registry and the 
      National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) are two 
      efforts initiated to improve outcomes in the congenital heart disease field. The 
      IMPACT Registry is focused on evaluating the use, risks, adverse events (AEs), 
      and outcomes associated with diagnostic and common interventional catheterization 
      procedures in all children and adults with congenital heart disease. Utilizing a 
      modular approach, the common procedures include diagnostic cardiac 
      catheterization, atrial septal defect device closure, patent ductus arteriosus 
      device closure, pulmonary valvuloplasty, aortic valvuloplasty, balloon and stent 
      angioplasty of coarctation of the aorta, pulmonary artery balloon stent 
      angioplasty, transcatheter pulmonary valve replacement, and electrophysiology 
      procedures including radiofrequency ablation. To date, important observations on 
      the common procedures have been made and a risk stratification methodology has 
      been created to allow comparisons between centers in AEs and quality improvement 
      activity. The registry is open to international participation. The NPC-QIC was 
      developed to reduce mortality and improve the quality of life of infants with 
      Hypoplastic Left Heart Syndrome (HLHS) during the interstage period between 
      discharge from the Norwood operation and admission for the bidirectional Glenn 
      procedure. Mortality in the interstage has been reduced by 44%. The IMPACT 
      Registry and the NPC-QIC have demonstrated value to the congenital heart disease 
      community. The IMPACT Registry, however, has not yet demonstrated an impact on 
      patient outcomes. The NPC-QIC, which combines both a registry with a learning 
      collaborative with specific aims, key drivers, and change strategies, has made 
      more significant gains with reductions in variation, growth failures, and 
      mortality.
FAU - Martin, Gerard R
AU  - Martin GR
AD  - 1 Division of Cardiology, Children's National Heart Institute and the George 
      Washington University School of Medicine, Washington, DC, USA.
FAU - Anderson, Jeffrey B
AU  - Anderson JB
AD  - 2 Heart Institute at Cincinnati Children's Hospital Medical Center, Cincinnati, 
      OH, USA.
FAU - Vincent, Robert N
AU  - Vincent RN
AD  - 3 Division of Pediatric Cardiology, Children's Healthcare of Atlanta-Emory 
      University, Atlanta, GA, USA.
LA  - eng
PT  - Journal Article
PT  - Review
PL  - United States
TA  - World J Pediatr Congenit Heart Surg
JT  - World journal for pediatric & congenital heart surgery
JID - 101518415
SB  - IM
MH  - Cardiology/*standards
MH  - Child
MH  - Heart Defects, Congenital/*surgery
MH  - Humans
MH  - Norwood Procedures/*standards
MH  - Quality Improvement/*organization & administration
MH  - *Registries
MH  - *Societies, Medical
OTO - NOTNLM
OT  - cardiac catheterization/intervention
OT  - congenital heart disease
OT  - databases
OT  - outcomes
EDAT- 2019/02/26 06:00
MHDA- 2019/04/04 06:00
CRDT- 2019/02/26 06:00
PHST- 2019/02/26 06:00 [entrez]
PHST- 2019/02/26 06:00 [pubmed]
PHST- 2019/04/04 06:00 [medline]
AID - 10.1177/2150135118815059 [doi]
PST - ppublish
SO  - World J Pediatr Congenit Heart Surg. 2019 Jan;10(1):72-80. doi: 
      10.1177/2150135118815059.