PMID- 31036016 OWN - NLM STAT- MEDLINE DCOM- 20191210 LR - 20231011 IS - 1478-4505 (Electronic) IS - 1478-4505 (Linking) VI - 17 IP - 1 DP - 2019 Apr 29 TI - Selecting, refining and identifying priority Cochrane Reviews in health communication and participation in partnership with consumers and other stakeholders. PG - 45 LID - 10.1186/s12961-019-0444-z [doi] LID - 45 AB - BACKGROUND: Priority-setting partnerships between researchers and stakeholders (meaning consumers, health professionals and health decision-makers) may improve research relevance and value. The Cochrane Consumers and Communication Group (CCCG) publishes systematic reviews in 'health communication and participation', which includes concepts such as shared decision-making, patient-centred care and health literacy. We aimed to select and refine priority topics for systematic reviews in health communication and participation, and use these to identify five priority CCCG Cochrane Reviews. METHODS: Twenty-eight participants (14 consumers, 14 health professionals/decision-makers) attended a 1-day workshop in Australia. Using large-group activities and voting, participants discussed, revised and then selected 12 priority topics from a list of 21 previously identified topics. In mixed small groups, participants refined these topics, exploring underlying problems, who they affect and potential solutions. Thematic analysis identified cross-cutting themes, in addition to key populations and potential interventions for future Cochrane Reviews. We mapped these against CCCG's existing review portfolio to identify five priority reviews. RESULTS: Priority topics included poor understanding and implementation of patient-centred care by health services, the fact that health information can be a low priority for health professionals, communication and coordination breakdowns in health services, and inadequate consumer involvement in health service design. The four themes underpinning the topics were culture and organisational structures, health professional attitudes and assumptions, inconsistent experiences of care, and lack of shared understanding in the sector. Key populations for future reviews were described in terms of social health characteristics (e.g. people from indigenous or culturally and linguistically diverse backgrounds, elderly people, and people experiencing socioeconomic disadvantage) more than individual health characteristics. Potential interventions included health professional education, interventions to change health service/health professional culture and attitudes, and health service policies and standards. The resulting five priority Cochrane Reviews identified were improving end-of-life care communication, patient/family involvement in patient safety, improving future doctors' communication skills, consumer engagement strategies, and promoting patient-centred care. CONCLUSIONS: Stakeholders identified priority topics for systematic reviews associated with structural and cultural challenges underlying health communication and participation, and were concerned that issues of equity be addressed. Priority-setting with stakeholders presents opportunities and challenges for review producers. FAU - Synnot, Anneliese J AU - Synnot AJ AD - Centre for Health Communication and Participation, School of Psychology and Public Health, La Trobe University, Melbourne, Australia. AD - Cochrane Australia, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia. FAU - Tong, Allison AU - Tong A AD - Sydney School of Public Health, The University of Sydney, Sydney, Australia. AD - Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia. FAU - Bragge, Peter AU - Bragge P AD - BehaviourWorks Australia, Monash Sustainable Development Institute, Monash University, Melbourne, Australia. FAU - Lowe, Dianne AU - Lowe D AD - Centre for Health Communication and Participation, School of Psychology and Public Health, La Trobe University, Melbourne, Australia. FAU - Nunn, Jack S AU - Nunn JS AD - Centre for Health Communication and Participation, School of Psychology and Public Health, La Trobe University, Melbourne, Australia. FAU - O'Sullivan, Molly AU - O'Sullivan M AD - Murdoch Children's Research Institute, Melbourne, Australia. FAU - Horvat, Lidia AU - Horvat L AD - Safer Care Victoria, Melbourne, Australia. FAU - Kay, Debra AU - Kay D AD - South Australian Health and Medical Research Institute, Adelaide, Australia. FAU - Ghersi, Davina AU - Ghersi D AD - NHMRC Clinical Trials Centre, Sydney Medical School, The University of Sydney, Sydney, NSW, Australia. AD - National Health and Medical Research Council, Canberra, Australia. FAU - McDonald, Steve AU - McDonald S AD - Cochrane Australia, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia. FAU - Poole, Naomi AU - Poole N AD - Australian Commission on Safety and Quality in Healthcare, Sydney, Australia. FAU - Bourke, Noni AU - Bourke N AD - Bass Coast Health, Wonthaggi, Australia. FAU - Lannin, Natasha A AU - Lannin NA AD - Alfred Health, Melbourne, Australia. AD - School of Allied Health (Occupational Therapy), La Trobe University, Melbourne, Australia. FAU - Vadasz, Danny AU - Vadasz D AD - Health Issues Centre, Melbourne, Australia. FAU - Oliver, Sandy AU - Oliver S AD - University College London, London, United Kingdom. AD - University of Johannesburg, Johannesburg, South Africa. FAU - Carey, Karen AU - Carey K AD - National Health and Medical Research Council, Canberra, Australia. FAU - Hill, Sophie J AU - Hill SJ AD - Centre for Health Communication and Participation, School of Psychology and Public Health, La Trobe University, Melbourne, Australia. sophie.hill@latrobe.edu.au. LA - eng GR - 1132803/National Health and Medical Research Council/ GR - 1106716/National Health and Medical Research Council/ PT - Journal Article DEP - 20190429 PL - England TA - Health Res Policy Syst JT - Health research policy and systems JID - 101170481 SB - IM MH - Adult MH - Aged MH - Aged, 80 and over MH - *Attitude of Health Personnel MH - *Communication MH - *Community Participation MH - Culture MH - Decision Making MH - Female MH - Health Communication MH - Health Literacy MH - Health Policy MH - *Health Priorities MH - *Health Services MH - Humans MH - Male MH - Middle Aged MH - *Patient Participation MH - Patient-Centered Care MH - Socioeconomic Factors MH - *Stakeholder Participation MH - Systematic Reviews as Topic PMC - PMC6489310 OTO - NOTNLM OT - Health communication OT - community participation OT - decision-making OT - health priorities OT - patient participation OT - patient-centred care COIS- ETHICS APPROVAL AND CONSENT TO PARTICIPATE: We received approval from La Trobe University Science, Health and Engineering College Human Ethics Sub-Committee (S15-52) and all participants provided written consent. CONSENT FOR PUBLICATION: Participants provided consent for the information they shared as part of this study, including anonymised direct quotes, to be included in publications. COMPETING INTERESTS: The authors declare that they have no competing interests. PB is an Associate Editor of Health Research Policy and Systems played no role in the peer review or editorial decisions for this paper. PUBLISHER'S NOTE: Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. EDAT- 2019/05/01 06:00 MHDA- 2019/12/18 06:00 PMCR- 2019/04/29 CRDT- 2019/05/01 06:00 PHST- 2018/07/04 00:00 [received] PHST- 2019/03/27 00:00 [accepted] PHST- 2019/05/01 06:00 [entrez] PHST- 2019/05/01 06:00 [pubmed] PHST- 2019/12/18 06:00 [medline] PHST- 2019/04/29 00:00 [pmc-release] AID - 10.1186/s12961-019-0444-z [pii] AID - 444 [pii] AID - 10.1186/s12961-019-0444-z [doi] PST - epublish SO - Health Res Policy Syst. 2019 Apr 29;17(1):45. doi: 10.1186/s12961-019-0444-z.