PMID- 31824398
OWN - NLM
STAT- PubMed-not-MEDLINE
LR  - 20201001
IS  - 1664-2295 (Print)
IS  - 1664-2295 (Electronic)
IS  - 1664-2295 (Linking)
VI  - 10
DP  - 2019
TI  - Efficiency and Patient-Reported Outcome Measures From Clinic to Home: The Human 
      Empowerment Aging and Disability Program for Digital-Health Rehabilitation.
PG  - 1206
LID - 10.3389/fneur.2019.01206 [doi]
LID - 1206
AB  - Background: The recent exponential growth of Digital Health (DH) in the 
      healthcare system provides a crucial transformation in healthcare, answering to 
      alarming threats related to the increasing number of Chronic Neurological 
      Diseases (CNDs). New long-term integrated DH-care approaches, including 
      rehabilitation, are warranted to address these concerns. Methods: The Human 
      Empowerment Aging and Disability (HEAD) rehabilitation program, a new long-term 
      integrated care including DH-care system, was evaluated in terms of efficiency 
      and patient-reported outcome measures (PROMs) in 107 CND patients (30 with 
      Parkinson's Disease, PD; 32 with Multiple Sclerosis, MS; 45 with stroke in 
      chronic stage). All participants followed 1-month of HEAD rehabilitation in 
      clinic (ClinicHEAD: 12 sessions, 3/week), then 1:3 patient was consecutively 
      allocated to 3-months telerehabilitation at home (HomeHEAD: 60 sessions, 5/week). 
      Efficiency (i.e., adherence, usability, and acceptability) and PROMs (i.e., 
      perceived functioning in real-world) were analyzed. Results: The rate of 
      adherence to HEAD treatment in clinic (>/=90%) and at home (77%) was high. 
      Usability of HEAD system was judged as good (System Usability Scale, median 
      70.00) in clinic and even more at home (median 80.00). Similarly, administering 
      the Technology Acceptance Model 3 questionnaire we found high scores both in 
      clinic/at home (Usefulness, mean 5.39 +/- 1.41 SD/mean 5.33 +/- 1.29 SD; Ease of use, 
      mean 5.55 +/- 1.05 SD/ mean 5.45 +/- 1.17 SD, External Control, mean 4.94 +/- 1.17 
      SD/mean 5.07 +/- 1.01 SD, Relevance, mean 5.68 +/- 1.29 SD/mean 5.70 +/- 1.13 SD and 
      Enjoyment, mean 5.70 +/- 1.40 SD/mean 6.01 +/- 1.08 SD). After ClinicHEAD, 
      participation and autonomy in daily routine was maintained or even ameliorated 
      (PD and stroke > MS). Whereas, increased functionality and participation in the 
      MS group was found only after HomeHEAD intervention. Discussion: Our results 
      suggest that a tele-health-based approach is both feasible and efficient in 
      providing rehabilitation care to CNDs from clinic to home. Increasing and 
      maintaining participation as well as autonomy in daily routine are promising 
      findings that open up scenarios for the continuity of care at home through 
      DH-care for CNDs.
CI  - Copyright (c) 2019 Isernia, Pagliari, Jonsdottir, Castiglioni, Gindri, Gramigna, 
      Palumbo, Salza, Moltenia and Baglio.
FAU - Isernia, Sara
AU  - Isernia S
AD  - IRCCS Fondazione Don Carlo Gnocchi ONLUS, Milan, Italy.
FAU - Pagliari, Chiara
AU  - Pagliari C
AD  - IRCCS Fondazione Don Carlo Gnocchi ONLUS, Milan, Italy.
FAU - Jonsdottir, Johanna
AU  - Jonsdottir J
AD  - IRCCS Fondazione Don Carlo Gnocchi ONLUS, Milan, Italy.
FAU - Castiglioni, Carlotta
AU  - Castiglioni C
AD  - Fondazione Opera San Camillo Presidio Sanitario San Camillo, Turin, Italy.
FAU - Gindri, Patrizia
AU  - Gindri P
AD  - Fondazione Opera San Camillo Presidio Sanitario San Camillo, Turin, Italy.
FAU - Gramigna, Cristina
AU  - Gramigna C
AD  - Villa Beretta Rehabilitation Center, Ospedale Valduce, Costa Masnaga, Italy.
FAU - Palumbo, Giovanna
AU  - Palumbo G
AD  - Villa Beretta Rehabilitation Center, Ospedale Valduce, Costa Masnaga, Italy.
FAU - Salza, Marco
AU  - Salza M
AD  - Fondazione Opera San Camillo Presidio Sanitario San Camillo, Turin, Italy.
FAU - Molteni, Franco
AU  - Molteni F
AD  - Villa Beretta Rehabilitation Center, Ospedale Valduce, Costa Masnaga, Italy.
FAU - Baglio, Francesca
AU  - Baglio F
AD  - IRCCS Fondazione Don Carlo Gnocchi ONLUS, Milan, Italy.
CN  - HEAD study group
LA  - eng
PT  - Case Reports
DEP - 20191119
PL  - Switzerland
TA  - Front Neurol
JT  - Frontiers in neurology
JID - 101546899
PMC - PMC6882300
OTO - NOTNLM
OT  - Parkinson's disease
OT  - multiple sclerosis
OT  - nervous system diseases
OT  - rehabilitation
OT  - stroke
OT  - technology
OT  - telerehabilitation
EDAT- 2019/12/12 06:00
MHDA- 2019/12/12 06:01
PMCR- 2019/11/19
CRDT- 2019/12/12 06:00
PHST- 2019/08/06 00:00 [received]
PHST- 2019/10/29 00:00 [accepted]
PHST- 2019/12/12 06:00 [entrez]
PHST- 2019/12/12 06:00 [pubmed]
PHST- 2019/12/12 06:01 [medline]
PHST- 2019/11/19 00:00 [pmc-release]
AID - 10.3389/fneur.2019.01206 [doi]
PST - epublish
SO  - Front Neurol. 2019 Nov 19;10:1206. doi: 10.3389/fneur.2019.01206. eCollection 
      2019.