PMID- 31849519 OWN - NLM STAT- PubMed-not-MEDLINE LR - 20220411 IS - 1179-1322 (Print) IS - 1179-1322 (Electronic) IS - 1179-1322 (Linking) VI - 11 DP - 2019 TI - Validation of the Chinese Version of the Shame and Stigma Scale in Patients with Head and Neck Cancer. PG - 10297-10305 LID - 10.2147/CMAR.S228843 [doi] AB - PURPOSE: Head and neck cancer (HNC) patients suffer from perceived shame and stigma due to the illness diagnosis, as well as disfigurement following surgery. To measure HNC patients' perception of shame and stigma, the Shame and Stigma Scale (SSS) was developed and preliminarily validated. In this study, we aimed to translate, adapt, and validate the SSS in Chinese. METHODS: This study consisted of a cross-sectional design with consecutive sampling and consisted of two stages: (1) translation of the SSS into Chinese by two bilingual professionals and (2) examination of the Chinese version of the SSS (C-SSS) for internal consistency, inter-rater reliability, test-retest reliability, construct validity, and concurrent validity. In total, 159 inpatients with HNC (mean age: 56.8 years, 95% males) were enrolled at a medical center in Southern Taiwan. RESULTS: The Principal Component Analysis of the C-SSS revealed a five-factor structure: 4 of the 5 factors were replicated in the original SSS, including Shame with Appearance, Regret, Social/Speech Concern, and Sense of Stigma; only factor 4, Self-discrimination, was newly identified in the current study. C-SSS showed acceptable internal validity (Cronbach's alpha =0.85), test-retest reliability, inter-rater reliability, and fair concurrent validity with the Taiwanese Depression Questionnaire (TDQ), Hamilton Depression Rating Scale (HAM-D), Hamilton Anxiety Rating Scale (HAM-A), and Explanatory Model Interview Catalogue (EMIC). CONCLUSION: The findings of this study indicate that C-SSS is a reliable and valid instrument for evaluating HNC patients' perception of shame and stigma in the Taiwanese population. CI - (c) 2019 Tseng et al. FAU - Tseng, Wei-Ting AU - Tseng WT AUID- ORCID: 0000-0002-5697-8871 AD - Department of Psychiatry, Kaohsiung Chang Gung Memorial Hospital and Chang Gung University College of Medicine, Kaohsiung, Taiwan. FAU - Lee, Yu AU - Lee Y AD - Department of Psychiatry, Kaohsiung Chang Gung Memorial Hospital and Chang Gung University College of Medicine, Kaohsiung, Taiwan. FAU - Hung, Chi-Fa AU - Hung CF AD - Department of Psychiatry, Kaohsiung Chang Gung Memorial Hospital and Chang Gung University College of Medicine, Kaohsiung, Taiwan. FAU - Lin, Pao-Yen AU - Lin PY AUID- ORCID: 0000-0002-1394-4567 AD - Department of Psychiatry, Kaohsiung Chang Gung Memorial Hospital and Chang Gung University College of Medicine, Kaohsiung, Taiwan. FAU - Chien, Chih-Yen AU - Chien CY AUID- ORCID: 0000-0002-6690-6038 AD - Department of Otolaryngology, Kaohsiung Chang Gung Memorial Hospital and Chang Gung University College of Medicine, Kaohsiung, Taiwan. FAU - Chuang, Hui-Ching AU - Chuang HC AD - Department of Otolaryngology, Kaohsiung Chang Gung Memorial Hospital and Chang Gung University College of Medicine, Kaohsiung, Taiwan. FAU - Fang, Fu-Min AU - Fang FM AD - Department of Radiation Oncology, Kaohsiung Chang Gung Memorial Hospital, Chang Gung University College of Medicine, Kaohsiung, Taiwan. FAU - Li, Shau-Hsuan AU - Li SH AD - Department of Hematology-Oncology, Kaohsiung Chang Gung Memorial Hospital and Chang Gung University College of Medicine, Kaohsiung, Taiwan. FAU - Huang, Tai-Lin AU - Huang TL AD - Department of Hematology-Oncology, Kaohsiung Chang Gung Memorial Hospital and Chang Gung University College of Medicine, Kaohsiung, Taiwan. FAU - Chong, Mian-Yoon AU - Chong MY AD - Department of Psychiatry, Chiayi Chang Gung Memorial Hospital and Chang Gung University College of Medicine, Chiayi, Taiwan. FAU - Wang, Liang-Jen AU - Wang LJ AUID- ORCID: 0000-0002-5320-1151 AD - Department of Child and Adolescent Psychiatry, Kaohsiung Chang Gung Memorial Hospital and Chang Gung University College of Medicine, Kaohsiung, Taiwan. LA - eng PT - Journal Article DEP - 20191209 PL - New Zealand TA - Cancer Manag Res JT - Cancer management and research JID - 101512700 EIN - Cancer Manag Res. 2020 Jun 25;12:4957. PMID: 32617018 PMC - PMC6910087 OTO - NOTNLM OT - assessment OT - head and neck cancer OT - psychometric OT - shame OT - stigma COIS- The authors report no conflicts of interest in this work. EDAT- 2019/12/19 06:00 MHDA- 2019/12/19 06:01 PMCR- 2019/12/09 CRDT- 2019/12/19 06:00 PHST- 2019/08/27 00:00 [received] PHST- 2019/11/15 00:00 [accepted] PHST- 2019/12/19 06:00 [entrez] PHST- 2019/12/19 06:00 [pubmed] PHST- 2019/12/19 06:01 [medline] PHST- 2019/12/09 00:00 [pmc-release] AID - 228843 [pii] AID - 10.2147/CMAR.S228843 [doi] PST - epublish SO - Cancer Manag Res. 2019 Dec 9;11:10297-10305. doi: 10.2147/CMAR.S228843. eCollection 2019.