PMID- 32160128
OWN - NLM
STAT- MEDLINE
DCOM- 20210702
LR  - 20240229
IS  - 2329-4523 (Electronic)
IS  - 2329-4515 (Linking)
VI  - 11
IP  - 2
DP  - 2020 Apr-Jun
TI  - Incorporating Ethically Relevant Empirical Data From Systematic Review of 
      Reasons: A Case Study of Sudden Unexpected Death in Epilepsy.
PG  - 91-103
LID - 10.1080/23294515.2020.1737981 [doi]
AB  - In this report we use a case study of risk of sudden unexpected death in epilepsy 
      (SUDEP) to illustrate the contribution of systematic literature reviews of 
      disease-specific ethical issues (DSEI). In particular, we show how 
      ethically-relevant empirical data from such reviews can be used in the 
      examination of the reasons for and against a particular normative approach to our 
      DSEI. That is, we have attempted to offer a normative recommendation in response 
      to the question of whether or not the risk of SUDEP should be disclosed to all 
      patients. This case study functions as a form of empirical bioethics by providing 
      a means of assessing empirical claims underlying reasons. As a result of this 
      process, we are then able to provide clear and transparent, if not definitive, 
      justification for a normative recommendation in response to a question of 
      interest.
FAU - Torrance, Robert
AU  - Torrance R
AD  - Department of Global Health and Development, London School of Hygiene and 
      Tropical Medicine, London, UK.
FAU - Yoon, Chang-Ho
AU  - Yoon CH
AD  - Faculty of Medical and Health Sciences, Auckland University, Auckland, New 
      Zealand.
FAU - Torrance, Andrew B
AU  - Torrance AB
AD  - School of Divinity, University of St, Andrews, UK.
FAU - Tasker, Robert C
AU  - Tasker RC
AD  - Harvard Medical School, Boston, MA, USA.
LA  - eng
PT  - Journal Article
DEP - 20200311
PL  - United States
TA  - AJOB Empir Bioeth
JT  - AJOB empirical bioethics
JID - 101631047
SB  - IM
MH  - Adult
MH  - Child
MH  - Humans
MH  - *Bioethical Issues
MH  - Bioethics
MH  - Data Collection/methods
MH  - *Disclosure/ethics
MH  - *Epilepsy
MH  - Practice Guidelines as Topic
MH  - Risk Factors
MH  - *Sudden Unexpected Death in Epilepsy
MH  - Systematic Reviews as Topic
OTO - NOTNLM
OT  - Medicine
OT  - Neurology
OT  - Professional ethics
OT  - Professional-patient relationship
EDAT- 2020/03/12 06:00
MHDA- 2021/07/02 06:00
CRDT- 2020/03/12 06:00
PHST- 2020/03/12 06:00 [pubmed]
PHST- 2021/07/02 06:00 [medline]
PHST- 2020/03/12 06:00 [entrez]
AID - 10.1080/23294515.2020.1737981 [doi]
PST - ppublish
SO  - AJOB Empir Bioeth. 2020 Apr-Jun;11(2):91-103. doi: 10.1080/23294515.2020.1737981. 
      Epub 2020 Mar 11.