PMID- 32467774
OWN - NLM
STAT- PubMed-not-MEDLINE
LR  - 20240328
IS  - 2056-7529 (Electronic)
IS  - 2056-7529 (Linking)
VI  - 6
DP  - 2020
TI  - Citizen and stakeholder led priority setting for long-term care research: 
      identifying research priorities within the Translating Research in Elder Care 
      (TREC) Program.
PG  - 24
LID - 10.1186/s40900-020-00199-1 [doi]
LID - 24
AB  - BACKGROUND: The Translating Research in Elder Care (TREC) program is a 
      longitudinal partnered program of research in Western Canada that aims to improve 
      the quality of care and quality of life for residents and quality of worklife for 
      staff in long-term care settings. This program of research includes researchers, 
      citizens (persons living with dementia and caregivers of persons living in 
      long-term care), and stakeholders (representatives from provincial and regional 
      health authorities, owner-operators of long-term care homes). The aim of this 
      paper is to describe how we used priority setting methods with citizens and 
      stakeholders to identify ten priorities for research using the TREC data. 
      METHODS: We adapted the James Lind Alliance Priority Setting Partnership method 
      to ensure our citizens and stakeholders could identify priorities within the 
      existing TREC data. We administered an online survey to our citizen and 
      stakeholder partners. An in-person priority setting workshop was held in March 
      2019 in Alberta, Canada to establish consensus on ten research priorities. The 
      in-person workshop used a nominal group technique and involved two rounds of 
      small group prioritization and one final full group ranking. RESULTS: We received 
      72 online survey respondents and 19 persons (citizens, stakeholders) attended the 
      in-person priority setting workshop. The workshop resulted in an unranked list of 
      their ten research priorities for the TREC program. These priorities encompassed 
      a range of non-clinical topics, including: influence of staffing (ratios, type of 
      care provider) on residents and staff work life, influence of the work 
      environment on resident outcomes, and the impact of quality improvement 
      activities on residents and staff. CONCLUSIONS: This modified priority setting 
      approach provided citizens and stakeholders with an opportunity to identify their 
      own research priorities within the TREC program, without the external pressures 
      of researchers. These priorities will inform the secondary analyses of the TREC 
      data and the development of new projects. This modified priority setting may be a 
      useful approach for research teams trying to engage their non-academic partners 
      and to identify areas for future research.
CI  - (c) The Author(s) 2020.
FAU - Chamberlain, Stephanie A
AU  - Chamberlain SA
AUID- ORCID: 0000-0001-9602-3060
AD  - 1Department of Family Medicine, Faculty of Medicine & Dentistry, University of 
      Alberta, Edmonton, Alberta T6G 2T4 Canada. GRID: grid.17089.37
FAU - Estabrooks, Carole A
AU  - Estabrooks CA
AD  - 2Faculty of Nursing, University of Alberta, Edmonton, Alberta T6G 1C9 Canada. 
      GRID: grid.17089.37
FAU - Keefe, Janice M
AU  - Keefe JM
AD  - 3Department of Family Studies and Gerontology, Mount Saint Vincent University, 
      Halifax, Nova Scotia B3M 2J6 Canada. GRID: grid.260303.4. ISNI: 0000 0001 2186 
      9504
FAU - Hoben, Matthias
AU  - Hoben M
AD  - 2Faculty of Nursing, University of Alberta, Edmonton, Alberta T6G 1C9 Canada. 
      GRID: grid.17089.37
FAU - Berendonk, Charlotte
AU  - Berendonk C
AD  - 4Translating Research in Elder Care (TREC) program, University of Alberta, 
      Edmonton, Alberta T6G 1C9 Canada. GRID: grid.17089.37
FAU - Corbett, Kyle
AU  - Corbett K
AD  - 4Translating Research in Elder Care (TREC) program, University of Alberta, 
      Edmonton, Alberta T6G 1C9 Canada. GRID: grid.17089.37
FAU - Gruneir, Andrea
AU  - Gruneir A
AD  - 1Department of Family Medicine, Faculty of Medicine & Dentistry, University of 
      Alberta, Edmonton, Alberta T6G 2T4 Canada. GRID: grid.17089.37
LA  - eng
PT  - Journal Article
DEP - 20200515
PL  - England
TA  - Res Involv Engagem
JT  - Research involvement and engagement
JID - 101708164
PMC - PMC7229578
OTO - NOTNLM
OT  - Citizen engagement
OT  - Health services research
OT  - Long-term care
OT  - Priority setting
OT  - Stakeholder engagement
COIS- Competing interestsThe authors declare that they have no competing interests.
EDAT- 2020/05/30 06:00
MHDA- 2020/05/30 06:01
PMCR- 2020/05/15
CRDT- 2020/05/30 06:00
PHST- 2019/11/26 00:00 [received]
PHST- 2020/04/23 00:00 [accepted]
PHST- 2020/05/30 06:00 [entrez]
PHST- 2020/05/30 06:00 [pubmed]
PHST- 2020/05/30 06:01 [medline]
PHST- 2020/05/15 00:00 [pmc-release]
AID - 199 [pii]
AID - 10.1186/s40900-020-00199-1 [doi]
PST - epublish
SO  - Res Involv Engagem. 2020 May 15;6:24. doi: 10.1186/s40900-020-00199-1. 
      eCollection 2020.