PMID- 33660770
OWN - NLM
STAT- MEDLINE
DCOM- 20211004
LR  - 20240416
IS  - 1945-7197 (Electronic)
IS  - 0021-972X (Print)
IS  - 0021-972X (Linking)
VI  - 106
IP  - 7
DP  - 2021 Jun 16
TI  - Unmet Information Needs Among Hispanic Women with Thyroid Cancer.
PG  - e2680-e2687
LID - 10.1210/clinem/dgab128 [doi]
AB  - CONTEXT: Thyroid cancer is the second most common cancer in Hispanic women. 
      OBJECTIVE: To determine the relationship between acculturation level and unmet 
      information needs among Hispanic women with thyroid cancer. DESIGN: 
      Population-based survey study. PARTICIPANTS: Hispanic women from Los Angeles 
      Surveillance Epidemiology and End Results registry with thyroid cancer diagnosed 
      in 2014-2015 who had previously completed our thyroid cancer survey in 2017-2018 
      (N = 273; 80% response rate). MAIN OUTCOME MEASURES: Patients were asked about 3 
      outcome measures of unmet information needs: (1) internet access, (2) thyroid 
      cancer information resources used, and (3) ability to access information. 
      Acculturation was assessed with the Short Acculturation Scale for Hispanics 
      (SASH). Health literacy was measured with a validated single-item question. 
      RESULTS: Participants' median age at diagnosis was 47 years (range 20-79) and 
      48.7% were low-acculturated. Hispanic women were more likely to report the 
      ability to access information "all of the time" if they preferred thyroid cancer 
      information in mostly English compared to mostly Spanish (88.5% vs 37.0%, 
      P < 0.001). Low-acculturated (vs high-acculturated) Hispanic women were more 
      likely to have low health literacy (47.2% vs 5.0%, P < 0.001) and report use of 
      in-person support groups (42.0% vs 23.1%, P = 0.006). Depending on their level of 
      acculturation, Hispanic women accessed the internet differently (P < 0.001) such 
      that low-acculturated women were more likely to report use of only a smartphone 
      (34.0% vs 14.3%) or no internet access (26.2% vs 1.4%). CONCLUSIONS: 
      Low-acculturated (vs high-acculturated) Hispanic women with thyroid cancer have 
      greater unmet information needs, emphasizing the importance of patient-focused 
      approaches to providing medical information.
CI  - (c) The Author(s) 2021. Published by Oxford University Press on behalf of the 
      Endocrine Society. All rights reserved. For permissions, please e-mail: 
      journals.permissions@oup.com.
FAU - Chen, Debbie W
AU  - Chen DW
AD  - Division of Metabolism, Endocrinology & Diabetes, University of Michigan, Ann 
      Arbor, MI 48109, USA.
AD  - Department of Internal Medicine, University of Michigan, Ann Arbor, MI 48109, 
      USA.
FAU - Reyes-Gastelum, David
AU  - Reyes-Gastelum D
AD  - Division of Metabolism, Endocrinology & Diabetes, University of Michigan, Ann 
      Arbor, MI 48109, USA.
AD  - Department of Internal Medicine, University of Michigan, Ann Arbor, MI 48109, 
      USA.
FAU - Hawley, Sarah T
AU  - Hawley ST
AD  - Department of Internal Medicine, University of Michigan, Ann Arbor, MI 48109, 
      USA.
FAU - Wallner, Lauren P
AU  - Wallner LP
AD  - Department of Internal Medicine, University of Michigan, Ann Arbor, MI 48109, 
      USA.
FAU - Hamilton, Ann S
AU  - Hamilton AS
AUID- ORCID: 0000-0001-5898-2308
AD  - Department of Preventive Medicine, University of Southern California, Los 
      Angeles, CA 90089, USA.
FAU - Haymart, Megan R
AU  - Haymart MR
AUID- ORCID: 0000-0002-1083-1575
AD  - Division of Metabolism, Endocrinology & Diabetes, University of Michigan, Ann 
      Arbor, MI 48109, USA.
AD  - Department of Internal Medicine, University of Michigan, Ann Arbor, MI 48109, 
      USA.
LA  - eng
GR  - R01 HS024512/HS/AHRQ HHS/United States
GR  - HHSN261201000035I/CA/NCI NIH HHS/United States
GR  - U58 DP003862/DP/NCCDPHP CDC HHS/United States
GR  - R01 CA201198/CA/NCI NIH HHS/United States
GR  - HHSN261201000035C/PC/NCI NIH HHS/United States
GR  - T32 DK007245/DK/NIDDK NIH HHS/United States
PT  - Journal Article
PT  - Research Support, N.I.H., Extramural
PT  - Research Support, Non-U.S. Gov't
PT  - Research Support, U.S. Gov't, P.H.S.
PL  - United States
TA  - J Clin Endocrinol Metab
JT  - The Journal of clinical endocrinology and metabolism
JID - 0375362
SB  - IM
MH  - Acculturation
MH  - Adult
MH  - Aged
MH  - Consumer Health Information/*statistics & numerical data
MH  - Female
MH  - Health Literacy
MH  - Health Services Accessibility/*statistics & numerical data
MH  - Health Services Needs and Demand/*statistics & numerical data
MH  - Humans
MH  - Los Angeles
MH  - Middle Aged
MH  - Needs Assessment
MH  - SEER Program
MH  - Surveys and Questionnaires
MH  - Thyroid Neoplasms/*ethnology
MH  - Young Adult
PMC - PMC8208677
OTO - NOTNLM
OT  - Hispanic women
OT  - health literacy
OT  - information needs
OT  - information seeking behavior
OT  - thyroid cancer
EDAT- 2021/03/05 06:00
MHDA- 2021/10/05 06:00
PMCR- 2022/02/28
CRDT- 2021/03/04 08:40
PHST- 2020/12/09 00:00 [received]
PHST- 2021/02/16 00:00 [revised]
PHST- 2021/03/05 06:00 [pubmed]
PHST- 2021/10/05 06:00 [medline]
PHST- 2021/03/04 08:40 [entrez]
PHST- 2022/02/28 00:00 [pmc-release]
AID - 6154483 [pii]
AID - dgab128 [pii]
AID - 10.1210/clinem/dgab128 [doi]
PST - ppublish
SO  - J Clin Endocrinol Metab. 2021 Jun 16;106(7):e2680-e2687. doi: 
      10.1210/clinem/dgab128.