PMID- 33871808 OWN - NLM STAT- MEDLINE DCOM- 20220107 LR - 20240405 IS - 1178-1661 (Electronic) IS - 1178-1653 (Print) IS - 1178-1653 (Linking) VI - 14 IP - 6 DP - 2021 Nov TI - The Perspectives of Patients with Chronic Diseases and Their Caregivers on Self-Management Interventions: A Scoping Review of Reviews. PG - 719-740 LID - 10.1007/s40271-021-00514-2 [doi] AB - BACKGROUND: Self-management (SM) interventions are supportive interventions systematically provided by healthcare professionals, peers, or laypersons to increase the skills and confidence of patients in their ability to manage chronic diseases. We had two objectives: (1) to summarise the preferences and experiences of patients and their caregivers (informal caregivers and healthcare professionals) with SM in four chronic diseases and (2) to identify and describe the relevant outcomes for SM interventions from these perspectives. METHODS: We conducted a mixed-methods scoping review of reviews. We searched three databases until December 2020 for quantitative, qualitative, or mixed-methods reviews exploring patients' and caregivers' preferences or experiences with SM in type 2 diabetes mellitus (T2DM), obesity, chronic obstructive pulmonary disease (COPD), and heart failure (HF). Quantitative data were narratively synthesised, and qualitative data followed a three-step descriptive thematic synthesis. Identified themes were categorised into outcomes or modifiable factors of SM interventions. RESULTS: We included 148 reviews covering T2DM (n = 53 [35.8%]), obesity (n = 20 [13.5%]), COPD (n = 32 [21.6%]), HF (n = 38 [25.7%]), and those with more than one disease (n = 5 [3.4%]). We identified 12 main themes. Eight described the process of SM (disease progression, SM behaviours, social support, interaction with healthcare professionals, access to healthcare, costs for patients, culturally defined roles and perceptions, and health knowledge), and four described their experiences with SM interventions (the perceived benefit of the intervention, individualised care, sense of community with peers, and usability of equipment). Most themes and subthemes were categorised as outcomes of SM interventions. CONCLUSION: The process of SM shaped the perspectives of patients and their caregivers on SM interventions. Their perspectives were influenced by the perceived benefit of the intervention, the sense of community with peers, the intervention's usability, and the level of individualised care. Our findings can inform the selection of patient-important outcomes, decision-making processes, including the formulation of recommendations, and the design and implementation of SM interventions. CI - (c) 2021. The Author(s). FAU - Nino de Guzman Quispe, Ena AU - Nino de Guzman Quispe E AUID- ORCID: 0000-0001-6587-2780 AD - Iberoamerican Cochrane Centre (IbCC)-Sant Pau Biomedical Research Institute (IIB-Sant Pau), C/ Sant Antoni Maria Claret 167. Pabellon 18, Planta 0, 08025, Barcelona, Spain. ENino@santpau.cat. FAU - Martinez Garcia, Laura AU - Martinez Garcia L AD - Iberoamerican Cochrane Centre (IbCC)-Sant Pau Biomedical Research Institute (IIB-Sant Pau), C/ Sant Antoni Maria Claret 167. Pabellon 18, Planta 0, 08025, Barcelona, Spain. AD - CIBER de Epidemiologia y Salud Publica (CIBERESP), Madrid, Spain. FAU - Orrego Villagran, Carola AU - Orrego Villagran C AD - Avedis Donabedian Research Institute (FAD), Barcelona, Spain. AD - Red de Investigacion en Servicios de Salud en Enfermedades Cronicas (REDISSEC), Madrid, Spain. AD - Universitat Autonoma de Barcelona, Barcelona, Spain. FAU - Heijmans, Monique AU - Heijmans M AD - Netherlands Institute for Health Services Research (Nivel), Utrecht, The Netherlands. FAU - Sunol, Rosa AU - Sunol R AD - Avedis Donabedian Research Institute (FAD), Barcelona, Spain. AD - Red de Investigacion en Servicios de Salud en Enfermedades Cronicas (REDISSEC), Madrid, Spain. AD - Universitat Autonoma de Barcelona, Barcelona, Spain. FAU - Fraile-Navarro, David AU - Fraile-Navarro D AD - Australian Institute of Health Innovation, Macquarie University, Sydney, Australia. AD - Madrid Primary Health Care Service, Madrid, Spain. FAU - Perez-Bracchiglione, Javier AU - Perez-Bracchiglione J AD - Interdisciplinary Centre for Health Studies (CIESAL), Universidad de Valparaiso, Valparaiso, Chile. FAU - Ninov, Lyudmil AU - Ninov L AD - European Patients' Forum, Brussels, Belgium. FAU - Salas-Gama, Karla AU - Salas-Gama K AD - Health Services Research Group, Institut de Recerca Vall d'Hebron Hospital, Barcelona, Spain. AD - Vall d'Hebron University Hospital, Barcelona, Spain. FAU - Viteri Garcia, Andres AU - Viteri Garcia A AD - Centro de Investigacion de Salud Publica y Epidemiologia Clinica (CISPEC), Universidad UTE, Quito, Ecuador. AD - Centro Asociado Cochrane de Ecuador, Universidad UTE, Quito, Ecuador. FAU - Alonso-Coello, Pablo AU - Alonso-Coello P AD - Iberoamerican Cochrane Centre (IbCC)-Sant Pau Biomedical Research Institute (IIB-Sant Pau), C/ Sant Antoni Maria Claret 167. Pabellon 18, Planta 0, 08025, Barcelona, Spain. AD - CIBER de Epidemiologia y Salud Publica (CIBERESP), Madrid, Spain. LA - eng PT - Journal Article PT - Research Support, Non-U.S. Gov't PT - Review DEP - 20210419 PL - New Zealand TA - Patient JT - The patient JID - 101309314 SB - IM MH - Caregivers MH - *Diabetes Mellitus, Type 2/therapy MH - Health Personnel MH - Humans MH - *Pulmonary Disease, Chronic Obstructive/therapy MH - *Self-Management PMC - PMC8563562 COIS- Ena Nino de Guzman Quispe, Laura Martinez Garcia, Carola Orrego Villagran, Monique Heijmans, Rosa Sunol, David Fraile-Navarro, Javier Perez-Bracchiglione, Lyudmil Ninov, Karla Salas-Gama, Andres Viteri Garcia, and Pablo Alonso-Coello have no conflicts of interest that are directly relevant to the content of this article. EDAT- 2021/04/20 06:00 MHDA- 2022/01/08 06:00 PMCR- 2021/04/19 CRDT- 2021/04/19 12:29 PHST- 2021/03/26 00:00 [accepted] PHST- 2021/04/20 06:00 [pubmed] PHST- 2022/01/08 06:00 [medline] PHST- 2021/04/19 12:29 [entrez] PHST- 2021/04/19 00:00 [pmc-release] AID - 10.1007/s40271-021-00514-2 [pii] AID - 514 [pii] AID - 10.1007/s40271-021-00514-2 [doi] PST - ppublish SO - Patient. 2021 Nov;14(6):719-740. doi: 10.1007/s40271-021-00514-2. Epub 2021 Apr 19.