PMID- 34198319
OWN - NLM
STAT- MEDLINE
DCOM- 20211108
LR  - 20230308
IS  - 1522-9645 (Electronic)
IS  - 0195-668X (Print)
IS  - 0195-668X (Linking)
VI  - 42
IP  - 41
DP  - 2021 Nov 1
TI  - Transition to adulthood and transfer to adult care of adolescents with congenital 
      heart disease: a global consensus statement of the ESC Association of 
      Cardiovascular Nursing and Allied Professions (ACNAP), the ESC Working Group on 
      Adult Congenital Heart Disease (WG ACHD), the Association for European Paediatric 
      and Congenital Cardiology (AEPC), the Pan-African Society of Cardiology (PASCAR), 
      the Asia-Pacific Pediatric Cardiac Society (APPCS), the Inter-American Society of 
      Cardiology (IASC), the Cardiac Society of Australia and New Zealand (CSANZ), the 
      International Society for Adult Congenital Heart Disease (ISACHD), the World 
      Heart Federation (WHF), the European Congenital Heart Disease Organisation 
      (ECHDO), and the Global Alliance for Rheumatic and Congenital Hearts (Global 
      ARCH).
PG  - 4213-4223
LID - 10.1093/eurheartj/ehab388 [doi]
AB  - The vast majority of children with congenital heart disease (CHD) in high-income 
      countries survive into adulthood. Further, paediatric cardiac services have 
      expanded in middle-income countries. Both evolutions have resulted in an 
      increasing number of CHD survivors. Expert care across the life span is 
      necessitated. In adolescence, patients transition from being a dependent child to 
      an independent adult. They are also advised to transfer from paediatrics to adult 
      care. There is no universal consensus regarding how transitional care should be 
      provided and how the transfer should be organized. This is even more challenging 
      in countries with low resources. This consensus document describes issues and 
      practices of transition and transfer of adolescents with CHD, accounting for 
      different possibilities in high-, middle-, and low-income countries. Transitional 
      care ought to be provided to all adolescents with CHD, taking into consideration 
      the available resources. When reaching adulthood, patients ought to be 
      transferred to adult care facilities/providers capable of managing their needs, 
      and systems have to be in place to make sure that continuity of high-quality care 
      is ensured after leaving paediatric cardiology.
CI  - (c) The Author(s) 2021. Published by Oxford University Press on behalf of the 
      European Society of Cardiology.
FAU - Moons, Philip
AU  - Moons P
AD  - KU Leuven Department of Public Health and Primary Care, KU Leuven, Kapucijnenvoer 
      35, Box 7001, B-3000 Leuven, Belgium.
AD  - Institute of Health and Care Sciences, University of Gothenburg, Sweden.
AD  - Department of Paediatrics and Child Health, University of Cape Town, South 
      Africa.
AD  - ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP).
FAU - Bratt, Ewa-Lena
AU  - Bratt EL
AD  - Institute of Health and Care Sciences, University of Gothenburg, Sweden.
AD  - Department of Paediatric Cardiology, Queen Silvia's Children's Hospital, 
      Gothenburg, Sweden.
AD  - Association for European Paediatric and Congenital Cardiology (AEPC).
FAU - De Backer, Julie
AU  - De Backer J
AD  - Department of Cardiology and Center for Medical Genetics, Ghent University 
      Hospital, Belgium.
AD  - Research Foundation Flanders (FWO), Brussels, Belgium.
AD  - ESC Working Group on Adult Congenital Heart Disease (WG ACHD).
FAU - Goossens, Eva
AU  - Goossens E
AD  - KU Leuven Department of Public Health and Primary Care, KU Leuven, Kapucijnenvoer 
      35, Box 7001, B-3000 Leuven, Belgium.
AD  - ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP).
AD  - Association for European Paediatric and Congenital Cardiology (AEPC).
AD  - Research Foundation Flanders (FWO), Brussels, Belgium.
AD  - Faculty of Medicine and Health Sciences, Centre for Research and Innovation in 
      Care, Division of Nursing and Midwifery, University of Antwerp, Antwerp, Belgium.
FAU - Hornung, Tim
AU  - Hornung T
AD  - Paediatric and Congenital Cardiology Service, Starship Children's Hospital, 
      Auckland, New Zealand.
AD  - Cardiac Society of Australia and New Zealand (CSANZ).
FAU - Tutarel, Oktay
AU  - Tutarel O
AD  - ESC Working Group on Adult Congenital Heart Disease (WG ACHD).
AD  - Department of Congenital Heart Disease and Paediatric Cardiology, German Heart 
      Centre Munich, TUM School of Medicine, Technical University of Munich, Munich, 
      Germany.
AD  - DZHK (German Centre for Cardiovascular Research), partner site Munich Heart 
      Alliance, Munich, Germany.
FAU - Zuhlke, Liesl
AU  - Zuhlke L
AD  - Department of Paediatrics and Child Health, University of Cape Town, South 
      Africa.
AD  - Division of Paediatric Cardiology, Red Cross War Memorial Childrens Hospital, 
      Cape Town, South Africa.
AD  - Division of Cardiology, Department of Medicine, Groote Schuur Hospital, 
      University of Cape Town, Cape Town, South Africa.
AD  - Pan-African Society of Cardiology (PASCAR).
FAU - Araujo, John Jairo
AU  - Araujo JJ
AD  - Department of Pediatric and Adult Congenital Heart Disease, Somer Incare 
      Cardiovascular Center, Medellin, Colombia.
AD  - Inter-American Society of Cardiology (IASC).
FAU - Callus, Edward
AU  - Callus E
AD  - Clinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy.
AD  - Department of Biomedical Sciences for Health, Universita degli Studi di Milano, 
      Milan, Italy.
AD  - European Congenital Heart Disease Organisation (ECHDO).
FAU - Gabriel, Harald
AU  - Gabriel H
AD  - ESC Working Group on Adult Congenital Heart Disease (WG ACHD).
AD  - Department of Cardiology, Medical University of Vienna, Austria.
FAU - Shahid, Nauman
AU  - Shahid N
AD  - Global Alliance for Rheumatic and Congenital Hearts (Global ARCH).
FAU - Sliwa, Karen
AU  - Sliwa K
AD  - Hatter Institute for Cardiovascular Research in Africa, University of Cape Town, 
      South Africa.
AD  - CHI, Faculty of Health Sciences, University of Cape Town, South Africa.
AD  - World Heart Federation (WHF).
FAU - Verstappen, Amy
AU  - Verstappen A
AD  - Global Alliance for Rheumatic and Congenital Hearts (Global ARCH).
FAU - Yang, Hsiao-Ling
AU  - Yang HL
AD  - School of Nursing, College of Medicine, National Taiwan University, Taipei, 
      Taiwan.
AD  - Asia-Pacific Pediatric Cardiac Society (APPCS).
FAU - Thomet, Corina
AU  - Thomet C
AD  - KU Leuven Department of Public Health and Primary Care, KU Leuven, Kapucijnenvoer 
      35, Box 7001, B-3000 Leuven, Belgium.
AD  - ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP).
AD  - Center for Congenital Heart Disease, University Hospital Inselspital, Department 
      of Cardiology, University of Bern, Switzerland.
AD  - International Society for Adult Congenital Heart Disease (ISACHD).
LA  - eng
GR  - MR/S005242/1/MRC_/Medical Research Council/United Kingdom
PT  - Journal Article
PL  - England
TA  - Eur Heart J
JT  - European heart journal
JID - 8006263
SB  - IM
MH  - Adolescent
MH  - Adult
MH  - Asia
MH  - Australia
MH  - *Cardiology
MH  - *Cardiovascular Nursing
MH  - Child
MH  - Consensus
MH  - *Heart Defects, Congenital/therapy
MH  - Humans
MH  - New Zealand
MH  - *Pediatrics
MH  - *Transition to Adult Care
MH  - United States
PMC - PMC8560210
OTO - NOTNLM
OT  - Adolescence
OT  - Continuity of care
OT  - Emerging adulthood
OT  - Heart defect, congenital
OT  - Transfer
OT  - Transition
EDAT- 2021/07/02 06:00
MHDA- 2021/11/09 06:00
PMCR- 2021/07/01
CRDT- 2021/07/01 20:31
PHST- 2021/01/04 00:00 [received]
PHST- 2021/04/06 00:00 [revised]
PHST- 2021/06/02 00:00 [accepted]
PHST- 2021/07/02 06:00 [pubmed]
PHST- 2021/11/09 06:00 [medline]
PHST- 2021/07/01 20:31 [entrez]
PHST- 2021/07/01 00:00 [pmc-release]
AID - 6312873 [pii]
AID - ehab388 [pii]
AID - 10.1093/eurheartj/ehab388 [doi]
PST - ppublish
SO  - Eur Heart J. 2021 Nov 1;42(41):4213-4223. doi: 10.1093/eurheartj/ehab388.