PMID- 35624313 OWN - NLM STAT- MEDLINE DCOM- 20220720 LR - 20240214 IS - 1432-1971 (Electronic) IS - 0172-0643 (Print) IS - 0172-0643 (Linking) VI - 43 IP - 6 DP - 2022 Aug TI - Kawasaki Disease Arab Initiative [Kawarabi]: Establishment and Results of a Multicenter Survey. PG - 1239-1246 LID - 10.1007/s00246-022-02844-w [doi] AB - Studies on Kawasaki disease (KD) in Arab countries are scarce, often providing incomplete data. This along with the benefits of multicenter research collaboratives led to the creation of the KD Arab Initiative [Kawarabi] consortium. An anonymous survey was completed among potential collaborative Arab medical institutions to assess burden of KD in those countries and resources available to physicians. An online 32-item survey was distributed to participating institutions after conducting face validity. One survey per institution was collected. Nineteen physicians from 12 countries completed the survey representing 19 out of 20 institutions (response rate of 95%). Fifteen (79%) institutions referred to the 2017 American Heart Association guidelines when managing a patient with KD. Intravenous immunoglobulin (IVIG) is not readily available at 2 institutions (11%) yet available in the country. In one center (5%), IVIG is imported on-demand. The knowledge and awareness among countries' general population was graded (0 to 10) at median/interquartiles (IQR) 3 (2-5) and at median/IQR 7 (6-8) in the medical community outside their institution. Practice variations in KD management and treatment across Arab countries require solid proactive collaboration. The low awareness and knowledge estimates about KD among the general population contrasted with a high level among the medical community. The Kawarabi collaborative will offer a platform to assess disease burden of KD, among Arab population, decrease practice variation and foster population-based knowledge. CI - (c) 2022. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature. FAU - Arab, Yousra AU - Arab Y AD - University of Sherbrooke, Sherbrooke, QC, Canada. FAU - Choueiter, Nadine AU - Choueiter N AD - Department of Pediatrics, Albert Einstein College of Medicine, Children's Hospital at Montefiore, 3415 Bainbridge Ave, Bronx, NY, 10467, USA. FAU - Dahdah, Nagib AU - Dahdah N AD - Division of Pediatric Cardiology, CHU Ste-Justine, Universite de Montreal, 3175 Cote Sainte-Catherine, Montreal, QC, H3T 1C5, Canada. FAU - El-Kholy, Nermeen AU - El-Kholy N AD - Pediatric Cardiology Department, AlJalila Children's Specialty Hospital, Dubai, United Arab Emirates. AD - Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, United Arab Emirates. FAU - Abu Al-Saoud, Sima Y AU - Abu Al-Saoud SY AD - Department of Pediatrics, Makassed Hospital, Faculty of Medicine, Al- Quds University, East-Jerusalem, Palestine. FAU - Abu-Shukair, Mohammed E AU - Abu-Shukair ME AD - Jordan Pediatric Allergy, Immunology and Rheumatology (JO-PAIR) Clinic, Amman, Jordan. FAU - Agha, Hala M AU - Agha HM AD - Pediatric Cardiology Division, Cairo University, Cairo, Egypt. FAU - Al-Saloos, Hesham AU - Al-Saloos H AD - Division of Cardiology, Sidra Medicine, Doha, Qatar. AD - Clinical Pediatrics, Weill Cornell Medicine, Doha, Qatar. FAU - Al Senaidi, Khalfan Salim AU - Al Senaidi KS AD - Division of Pediatric Cardiology, Sultan Qaboos University Hospital, Muscat, Oman. FAU - Alzyoud, Raed AU - Alzyoud R AD - Pediatric Immunology, Allergy, and Rheumatology Division, Queen Rania Children's Hospital, Amman, Jordan. FAU - Bouaziz, Asma AU - Bouaziz A AD - Headmaster of Children and Neonatal Department, Hopital Regional, Ben Arous, Tunisia. FAU - Boukari, Rachida AU - Boukari R AD - Pediatric Department, University Hospital Mustapha Bacha, Algiers University, Algiers, Algeria. FAU - El Ganzoury, Mona M AU - El Ganzoury MM AD - Pediatric Cardiology Division, Department of Pediatrics, Faculty of Medicine, Ain Shams University, Cairo, Egypt. FAU - Elmarsafawy, Hala M AU - Elmarsafawy HM AD - Pediatric Cardiology Division, Children Hospital, Mansoura University, Mansoura, Egypt. FAU - ELrugige, Najat AU - ELrugige N AD - Pediatric Cardiology Department, Benghazi Children Hospital, Faculty of Medicine, Benghazi University, Benghazi, Libya. FAU - Fitouri, Zohra AU - Fitouri Z AD - Unit of Rheumatology, Emergency and Outpatient Department, Pediatric Hospital of Bechir Hamza of Tunis, University Tunis El Manar, 1007 Djebel Lakhedher Bab Saadoun, Tunis, Tunisia. FAU - Ladj, Mohamed S AU - Ladj MS AD - Pediatric Department, Djillali Belkhenchir University Hospital, Algiers, Algeria. AD - Faculty of Medicine, Algiers University, Algiers, Algeria. FAU - Mouawad, Pierre AU - Mouawad P AD - Pediatric Department, Saint George Hospital University Medical Center, Beirut, Lebanon. FAU - Salih, Aso F AU - Salih AF AD - Pediatric Cardiology Department/Children's Heart Hospital- Sulaimani College of Medicine- Sulaimani University, Al-Sulaimaniyah, Iraq. FAU - Rojas, Rocio G AU - Rojas RG AD - Clinical Research Program, Division of Pediatric Cardiology, CHU Sainte-Justine, Montreal, QC, H3T 1C5, Canada. FAU - Harahsheh, Ashraf S AU - Harahsheh AS AUID- ORCID: 0000-0002-2622-573X AD - Division of Cardiology, Department of Pediatrics, Children's National Hospital, George Washington University School of Medicine & Health Sciences, 111 Michigan Ave, NW, Washington, DC, 20010, USA. aharahsh@childrensnational.org. LA - eng GR - R61 HD105591/HD/NICHD NIH HHS/United States PT - Journal Article PT - Multicenter Study DEP - 20220527 PL - United States TA - Pediatr Cardiol JT - Pediatric cardiology JID - 8003849 RN - 0 (Immunoglobulins, Intravenous) SB - IM MH - Arabs MH - Humans MH - Immunoglobulins, Intravenous MH - *Mucocutaneous Lymph Node Syndrome/diagnosis/drug therapy/epidemiology MH - Surveys and Questionnaires PMC - PMC9140321 OTO - NOTNLM OT - Arab OT - Cardiac complications OT - Kawasaki disease OT - Multicenter collaborative OT - Registry OT - Survey COIS- All authors declare that they have no conflict of interest. EDAT- 2022/05/28 06:00 MHDA- 2022/07/22 06:00 PMCR- 2022/05/27 CRDT- 2022/05/27 23:26 PHST- 2021/12/12 00:00 [received] PHST- 2022/02/03 00:00 [accepted] PHST- 2022/05/28 06:00 [pubmed] PHST- 2022/07/22 06:00 [medline] PHST- 2022/05/27 23:26 [entrez] PHST- 2022/05/27 00:00 [pmc-release] AID - 10.1007/s00246-022-02844-w [pii] AID - 2844 [pii] AID - 10.1007/s00246-022-02844-w [doi] PST - ppublish SO - Pediatr Cardiol. 2022 Aug;43(6):1239-1246. doi: 10.1007/s00246-022-02844-w. Epub 2022 May 27.