PMID- 36242025 OWN - NLM STAT- MEDLINE DCOM- 20221018 LR - 20221031 IS - 1471-2369 (Electronic) IS - 1471-2369 (Linking) VI - 23 IP - 1 DP - 2022 Oct 14 TI - Potential living kidney donors' positive experiences of an information letter from healthcare: a descriptive qualitative study. PG - 332 LID - 10.1186/s12882-022-02959-5 [doi] LID - 332 AB - BACKGROUND: Patients who need a live donor kidney transplant (LDKT) must often ask potential donors (PLDs) themselves. This is a difficult task and healthcare could unburden them by making this first contact, ensuring also that PLDs receive correct information. We investigated how PLDs experience receiving a letter from healthcare about LDKT, live kidney donation, and inviting them to meet with professionals to get more information. METHODS: The letter (LD-letter) was sent to a cohort of 46 individuals, from which a purposeful sample of 15 were interviewed using a semi-structured guide covering their experience of the letter, views on being approached by healthcare, and opinions on style and content. Interviews were analyzed using conventional inductive analysis. RESULTS: We identified three categories of experiences: Category (1) Reflections on receiving the letter, contains three subcategories relating to how the letter did not induce pressure to donate, did not affect the PLD's relationship with the patient with kidney disease, and made the letter-receiver feel important in the transplant process; Category (2) The letter creates clarification and trust, also contains three subcategories, relating to how it clarified the voluntariness of donation and neutrality of healthcare providers with respect to the PLD's decision, elucidated the patient with kidney disease's current stage of disease (where transplantation was approaching), and unburdened patients from the responsibility of contacting PLDs on their own; Category (3) Opinions and suggestions about the letter and further communication, with four subcategories, relating to preference of a letter as the first step for communication about LDKT, suggestions on style and content, views on following up the letter, and how open meetings about LDKT were an important information source. Furthermore, 80% of the interviewees found the letter's information comprehensive, 67% found it easy to read and respectful, and 86% rated it as good or very good. CONCLUSION: Potential donors prefer and recommend a letter as the first step for communication regarding LD. The LD-letter unburdens patients from the task of asking PLDs and stresses the voluntariness of donation, does not leave PLDs feeling coerced or lead to negative effects in their relationship with the patient. CI - (c) 2022. The Author(s). FAU - Lagging, Eva AU - Lagging E AD - Center for Health Care Ethics, LIME, Karolinska Institutet, 171 77, Stockholm, Sweden. eva.lagging@ki.se. AD - Perioperative Medicine and Intensive Care, Regional Donation Center Stockholm-Gotland, Karolinska University Hospital, 171 76, Solna, Stockholm, Sweden. eva.lagging@ki.se. FAU - Larsson, Kjerstin AU - Larsson K AD - Department of Public Health and Caring Sciences, Health equity and working life, Uppsala University, 752 37, Uppsala, Sweden. FAU - Wadstrom, Jonas AU - Wadstrom J AD - Department of Transplantation Surgery, Karolinska University Hospital, 141 86, Huddinge, Stockholm, Sweden. FAU - Krekula, Linda Gyllstrom AU - Krekula LG AD - Center for Health Care Ethics, LIME, Karolinska Institutet, 171 77, Stockholm, Sweden. AD - Perioperative Medicine and Intensive Care, Regional Donation Center Stockholm-Gotland, Karolinska University Hospital, 171 76, Solna, Stockholm, Sweden. FAU - Tibell, Annika AU - Tibell A AD - Center for Health Care Ethics, LIME, Karolinska Institutet, 171 77, Stockholm, Sweden. AD - Department of Research, Education and Innovation, Karolinska University Hospital, 171 76, Stockholm, Sweden. LA - eng PT - Journal Article PT - Research Support, Non-U.S. Gov't DEP - 20221014 PL - England TA - BMC Nephrol JT - BMC nephrology JID - 100967793 SB - IM MH - Delivery of Health Care MH - Humans MH - Kidney MH - *Kidney Transplantation MH - *Living Donors MH - Qualitative Research PMC - PMC9569060 OTO - NOTNLM OT - Healthcare OT - Information OT - Living kidney donor OT - Qualitative OT - Recruitment phase OT - Transplantation COIS- The authors declare that they have no competing interests. EDAT- 2022/10/15 06:00 MHDA- 2022/10/19 06:00 PMCR- 2022/10/14 CRDT- 2022/10/14 23:47 PHST- 2022/07/15 00:00 [received] PHST- 2022/09/26 00:00 [accepted] PHST- 2022/09/12 00:00 [revised] PHST- 2022/10/14 23:47 [entrez] PHST- 2022/10/15 06:00 [pubmed] PHST- 2022/10/19 06:00 [medline] PHST- 2022/10/14 00:00 [pmc-release] AID - 10.1186/s12882-022-02959-5 [pii] AID - 2959 [pii] AID - 10.1186/s12882-022-02959-5 [doi] PST - epublish SO - BMC Nephrol. 2022 Oct 14;23(1):332. doi: 10.1186/s12882-022-02959-5.