PMID- 37169501
OWN - NLM
STAT- MEDLINE
DCOM- 20230515
LR  - 20230823
IS  - 2044-6055 (Electronic)
IS  - 2044-6055 (Linking)
VI  - 13
IP  - 5
DP  - 2023 May 11
TI  - Informal carers' information needs in managing behavioural and psychological 
      symptoms of people with dementia and related mHealth applications: a systematic 
      integrative review to inform the design of an mHealth application.
PG  - e069378
LID - 10.1136/bmjopen-2022-069378 [doi]
LID - e069378
AB  - OBJECTIVE: To review and synthesise the evidence on informal carers' information 
      needs in managing behavioural and psychological symptoms of dementia (BPSD) of 
      their care recipients and related mobile health (mHealth) applications to inform 
      the design of an mHealth application. DESIGN: This is a systematic integrative 
      review guided by Whittemore and Knafl's five-stages framework. Six databases were 
      searched: Cochrane, CINAHL, Embase, MEDLINE, ProQuest and PsycINFO. The key 
      concepts included 'dementia', 'behavioural and psychological symptoms', 'informal 
      carers' and ('information need' or 'mHealth application'). Peer-reviewed 
      full-text articles published in English from 2000 to 2022 were included. The 
      methodological rigour of studies was analysed using the Mixed Methods Appraisal 
      Tool V.2018. Preferred Reporting Items for Systematic Reviews and 
      Meta-Analyses-2020 reporting guidelines were followed. RESULTS: This review 
      included 34 studies, including quantitative (n=13), qualitative (n=17) and 
      mixed-method (n=4) studies. Four major themes emerged from the reported studies: 
      the need for addressing information needs on managing BPSD, the role of support 
      systems in managing BPSD, self-care for carers and the role of mHealth 
      applications in providing education and support for carers. In managing BPSD, 
      carers seek knowledge about dementia and BPSD, the roles of the carers and 
      misconceptions about BPSD. One study reported an mHealth application to monitor 
      the behavioural issues of people with dementia. CONCLUSION: Informal carers of 
      people with dementia face a number of challenges when providing care for BPSD of 
      their care recipients. The lack of knowledge on managing BPSD is a significant 
      challenge. Support systems such as professional, social, residential, legal and 
      eHealth have a significant role in managing the BPSD of people with dementia in 
      the community. mHealth interventions are sparse to support BPSD management. These 
      findings can be used in designing an mHealth application that addresses needs 
      related to managing BPSD of informal carers of people with dementia. PROSPERO 
      REGISTRATION NUMBER: CRD42021238540.
CI  - (c) Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY-NC. No 
      commercial re-use. See rights and permissions. Published by BMJ.
FAU - Jagoda, Thilanka
AU  - Jagoda T
AUID- ORCID: 0000-0002-9169-0750
AD  - Department of Community Medicine, Faculty of Medicine, University of Peradeniya, 
      Peradeniya, Sri Lanka thilanka@sjp.ac.lk.
AD  - Department of Nursing and Midwifery, University of Sri Jayewardenepura, Nugegoda, 
      Sri Lanka.
FAU - Dharmaratne, Samath
AU  - Dharmaratne S
AD  - Department of Community Medicine, Faculty of Medicine, University of Peradeniya, 
      Peradeniya, Sri Lanka.
AD  - Postgraduate Institute of Medical Sciences, University of Peradeniya, Peradeniya, 
      Sri Lanka.
AD  - Institute for Health Metrics and Evaluation, Department of Health Metrics 
      Sciences, School of Medicine University of Washington, Seattle, Washington, USA.
FAU - Rathnayake, Sarath
AU  - Rathnayake S
AUID- ORCID: 0000-0003-2379-1610
AD  - Department of Nursing, Faculty of Allied Health Sciences, University of 
      Peradeniya, Peradeniya, Sri Lanka.
LA  - eng
PT  - Journal Article
PT  - Systematic Review
DEP - 20230511
PL  - England
TA  - BMJ Open
JT  - BMJ open
JID - 101552874
SB  - IM
MH  - Humans
MH  - *Caregivers/psychology
MH  - *Telemedicine
MH  - Self Care
PMC - PMC10439342
OTO - NOTNLM
OT  - Dementia
OT  - GERIATRIC MEDICINE
OT  - Old age psychiatry
COIS- Competing interests: None declared.
EDAT- 2023/05/12 01:07
MHDA- 2023/05/15 06:42
PMCR- 2023/05/11
CRDT- 2023/05/11 21:03
PHST- 2023/05/15 06:42 [medline]
PHST- 2023/05/12 01:07 [pubmed]
PHST- 2023/05/11 21:03 [entrez]
PHST- 2023/05/11 00:00 [pmc-release]
AID - bmjopen-2022-069378 [pii]
AID - 10.1136/bmjopen-2022-069378 [doi]
PST - epublish
SO  - BMJ Open. 2023 May 11;13(5):e069378. doi: 10.1136/bmjopen-2022-069378.